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The main goals of Joseph Perusic's "Survivor One" project include:

Longtermsurvivor 1
Longtermsurvivor 1 CSN Member Posts: 43 Member

  • Raising awareness about the long-term physical and psychological effects (late effects) of cancer treatments, especially for adult survivors of childhood cancer [1].
  • Archiving survivor experiences to document the systemic issues within the medical community, such as a lack of institutional follow-up and the system's focus on "the cure" over lifelong consequences [1].
  • Advocating for systemic change in cancer care and follow-up protocols, using his own experiences and documentation as a "blueprint" for improvement [1].
  • Providing resources and information for other long-term survivors facing similar challenges, ultimately aiming to prevent others from falling through the cracks of the current healthcare system [1].
  • Highlighting the perspective of the patient/survivor as a crucial component of understanding and improving the entire cancer survivorship experience [1]. 

The main goals of Joseph Perusic's "Survivor One" project are centered on systemic change, advocacy, and creating a supportive archive for other survivors of cancer and treatment side effects. The primary objectives include:

  • Systemic Critique and Change: To identify and address the flaws in the current medical system regarding long-term cancer survivorship, particularly the failure to recognize and follow up on late effects of treatment.
  • Archiving Experiences and Tools: To function as a "living archive" of long-term survivor experiences, practical tools, and reflections. This provides documentation of the realities of life after a "cure".
  • Validation and Community: To assure other survivors that they are not alone in feeling "dismissed, unheard, or reduced to a diagnosis," and to provide a space where their experiences are valued.
  • Improving Quality of Life: To advocate for improved quality of life and "mercy" for survivors who face ongoing complications, ensuring they do not have to "pay for mistakes" made by the system.
  • Preventing Future Issues: To use his own story and the collected data as a "blueprint" for better care protocols, so that other survivors do not have to face the same struggles alone