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Intrahepatic Cholangio, Stage 1 but with R1 positive margin

HLawson241
HLawson241 CSN Member Posts: 1 *
in Liver Cancer #1

Hello,

I’m looking to connect with anyone who had Stage I intrahepatic cholangiocarcinoma and surgery that resulted in a positive (R1) margin.

  • What treatment did you do after surgery (chemo, radiation, surveillance, etc.)?
  • How have your outcomes and follow-up been?
  • Any advice you’d share with someone in this situation?

Thank you so much for sharing your experience.

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Comments

  • WallaceGirl
    WallaceGirl CSN Member Posts: 1 *
    #2

    I was diagnosed Feb 2025 and had surgery in April but margins were clear. I had four cycles of gemzar and six cycles of Xeloda. I was declared NED in June.

    My biggest advice is to assemble a medical team you have full faith and trust in. Write any questions down in a notebook you bring to your appointments when you think of them. Accept help when offered. I’m rooting for you!

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