The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Social groups for brain cancer survivors

jenpro
jenpro CSN Member Posts: 3 Member

Hi all, new member and caregiver here,

My sister is a brain cancer survivor of 10 years, she had a medulla blastoma "grade 4" and the base of her brain and went through chemo/radiation. She wasn't able to return to work due to her balance issues and short-term memory loss. As the years have gone on, her side effects have worsened, with tongue paralysis, sluggishness, and worsening memory and balance/walking. Ever since she went into remission, her friends dropped off and she has a hard time making friends. As her sister I do my best to socialize her and she volunteers at a museum once a week, but I know she'd do so much better if she knew how to commune with people who understand what she's been through. I see many post-cancer groups that are active physically, but she can't do those hiking/kayaking groups. She just wants to talk to people. She's so fun and wants friends.

Any tips I'd appreciate, especially in Western WA :) Or hit me up if you're in the area!