Caregiving experience

gspacem

Just curious if anyone has experience kinda filling in the blanks after caregiving. I wouldn't give up the experience if I had the choice, but it was incredibly long and challenging. Non the less mom is a long term survivor now but I feel like parts of my journey are in best terms, ahead. Thanks!

Katarina138

https://csn.cancer.org/discussion/329655/caregiving-experience

Hi! I have been going through the process with my mom (tripple-negative breast cancer) since June, and am now coming to terms that there is a long road ahead, but at least the prognosis is good, so we are trying to take it day by day. I am curious to know more about what you mean by "filling in the blanks after caregiving"?
Wishing all the best to you and your mom!

gspacem

Glad you found the post Kat. First of all, Thanks- mom is pretty awesome. We were fortunate. Glad to hear about your mother's prognosis.

Essentially what I mean by filling in the gaps is twofold. First of all most of our family friends especially mine, even professional network following the five or so years treatment and recovery disappeared. It's like we are overly novel to them. We were warned. It's just sad. When we reach out for help it's like they never knew us. So be prepared, friends and dynamics in survival change. Coping us conglomerated as caregiving is often petal to the metal.

Where I live in Wildwood nj folks are either jealously distant -envious or highly supportive, there's no in between. Some folks are like near dangerously interested and the gap is like I'm a person not a caregiver only. Overall it's a wild ride. Overall people don't care.

Katarina138

https://csn.cancer.org/discussion/comment/1724886#Comment_1724886

A wild ride indeed.. Thank you for sharing!