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Will HBO do the trick?

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Comments

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Hi again,

    Just to inform ya that:

    I am now 3.5 months since I last experienced hematuria. This seems to mean that the HBO worked well and cured my case of cystitis.

    I am feeling well and more energetic.

    Based on this experience,  I think that HBO can be considered as a viable "aid" (a salvage treatment) for the many distressed, after radiotherapy, with cystitis, protitis or fistulas.

    The PSA of this month came out again as undetectable at 0.006 ng/ml. The myth that HBO could awaken a sleeping bandit is not valid.

    Best to all.

    VGama

  • Josephg
    Josephg CSN Member Posts: 564 Member

    Thank you for your update and great news, Vasco. Always appreciated when you share your health of PCa knowledge and experiences.

    I investigated HBO in my area, and the closest facility is a 40+ minute drive away from me. So, I'm not going to do HBO at this time, and see where my periodic gross hematuria takes me.

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Wow, …

    you must have your reason for not doing the hyperbaric other than the distance to the facilities. 40 minutes represents 50 km (30 miles). That is acceptable if we think on the benefits you may get from this treatment.

    In any case, I respect your decision. I wonder what are you doing to control the hematuria. Hopefully that leads to success too.

    Best

    VG

  • Josephg
    Josephg CSN Member Posts: 564 Member

    Hi Vasco,

    Distance and time are my main concern, but, as you suggested, my other decision factor is the frequency of the onset of my hematuria. My hematuria occurs only approximately once per year, and it last for only 2-3 days. As such, I do not feel an overwhelming need to invest the time for that therapy at this time. Of course, if the frequency of my hematuria changes, I will certainly re-assess at that time.

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Thanks for responding. I would choose the same if the frequency was that short.

    In my case, the occurence of blood in urine was more constant. It started when under pressure participating in a Japanese chess competition (Nov 2024) lasting one week and then stopping for a month. After TURBT, diagnosing cystitis, it increased the rate for once every three days.

    Well, today we will be tasting the new wine and eating chestnuts as tradition in Sant Martin's Day. I will be thinking of you. 😁😁

  • Old Salt
    Old Salt CSN Member Posts: 1,704 Member

    I guess I am late joining the festivities 😉

  • centralPA
    centralPA CSN Member Posts: 439 Member

    So what is it like being in the hyperbaric chamber? Seems like it might be kind of chill and meditative. A chance to step away from life’s toils?

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Sincerely I don't know if the inner temperature of the vessel changes with the seasons. In August, at begining while being decompressed it is cool, then it turns hot and the air-conditioning starts.

    For entertainment they play films on monitors set on the walls. Each session takes 140 minutes.

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Hi again,

    I had a bladder urodinamic exam done to evaluate the bladder's function, ordered by my urologist because of extremely incontinence since having TURBT.

    The results of this test were not favorable indicating a status of constant "overactivity" (neurologic) and low capacity (90 ml). In other words, my bladder's sphincter is gone and can't hold urine, becoming incontinent when in standing position.

    When sitting or laying down the urine is hold by the bending position of the urethra.

    The aim of this exam was to verify the possibilities for installing an AUS device. I do not know what could be the limits constraining the benefits of AUS, but the doctor doing the exam recommended me to have more hyperbaric sessions looking for a higher improvement of the bladder's conditions.

    Well, HBO was good to me in August "eliminating" the active radical cystitis, so I expect it to be good again this time. The NHS doctor has given me a copy of the official "Trust Receipt" they sent to the military hospital for the hyperbaric treatment. It says 20 sessions.

    Best

    VG

  • Clevelandguy
    Clevelandguy CSN Member Posts: 1,374 Member
    edited December 4 #31

    Hi,

    Thanks for the update, always good to learn of another tool for the toolbox in the fight against Pca. Best of luck with future hyperbaric treatments and have a happy holiday season.

    Dave 3+4🎄🥗

  • Josephg
    Josephg CSN Member Posts: 564 Member

    I wish you the best of outcomes, Vasco, on the additional HBO series.

    If that is not successful, I may be welcoming you the AUS800 Club.

  • VascodaGama
    VascodaGama CSN Member Posts: 3,771 Member

    Thanks for the encouragement. Best wishes for a happy holiday season to all of you.