Vulva and sarcoma cancer

PamLeeJen

I recently have been diagnosed with Vulva and sarcoma cancer. I have lichens schlerosis and haven't gone to gyn for over ten years, mistake! I had one week of bleeding so finally went to gyn. He wanted me to get biopsy of 3 mm mass. That's when two cancers showed up on scan. At the same time, had gallbladder removed because have had stomach issues for years. (Probably didnt need out). Now nine days have passed at stomach feels worse. Constantly nauseous with dull aching pain at top of stomach, hardly can get off couch. Plus, bowel movements are very hard to push out. Also, weight loss has been extreme. I am seeing oncologist in a week which I will probably get pet scan. I am worried it might have spread. I did have ct scan of adomen and pelvis with contrast, transvaginal ultrasound, ultrasound, pap smear, all blood tests, urine and everything turned out perfect. Really nervous though. Any positive support will be welcomed.