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My Battle with Ewing’s Sarcoma

Toddkelsey
Toddkelsey CSN Member Posts: 1 Member
in Sarcoma #1

I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery, maintenance chemotherapy, and lung radiation. I was declared disease free in May of 2023! I’ve been in remission for a little under two years. It was a long journey and I’m sure many others have similar stories.

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  • bcrabtree
    bcrabtree CSN Member Posts: 1 *
    #2

    Thank you for sharing my Daughter was recently diagnosed with Ewing sarcoma on her sacram thankfully the pet scan didn’t show any other tumors she has begun chemotherapy. Thanks for giving us hope

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