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I would greatly appreciate your opinion.

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Comments

  • Old Salt
    Old Salt CSN Member Posts: 1,737 Member
    #22
    https://csn.cancer.org/discussion/comment/1719194#Comment_1719194

    Not sure that's correct. AI says that the terms are often used interchangeably.

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  • Old Salt
    Old Salt CSN Member Posts: 1,737 Member
    edited December 2024 #23

    Not sure whether the staging is T2a or T2b. Or do you think that the perineural invasion raised the staging to T2b? I think it is also Grade Group 1. The positive loci were all on one side, I think this would make the case T2a.

    See

    Prostate Cancer Stages | Staging of Prostate Cancer | American Cancer Society

    If you are T2a, the case would be considered low-risk

    If the correct diagnosis is T2b, the case would be favorable intermediate risk

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  • centralPA
    centralPA CSN Member Posts: 446 Member
    #24
    https://csn.cancer.org/discussion/comment/1719378#Comment_1719378

    I think the "more than half on one side" kicks it into T2b. I'm assuming that with 5 of 12 biopsy samples positive, all on the left side, that means 5 of 6 are positive on the left side. I could have misinterpreted it!

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  • lighterwood67
    lighterwood67 CSN Member Posts: 397 Member
    #25

    Well, I had a RALP in March of 2018. Gleason 4+3=7. At this time my PSA is undetectable; I am continent; I can still be intimate with my wife (only if I can catch her and I am not too sure if she wants me to). Obviously, AS was not an option for me in my opinion. I chose surgery because I thought the radiation approach would tie me up for a while. I tried to keep Quality of Life in front of me and my wife. In my view, so far, I have been fortunate. Like a lot of the folks say on this site, find the best facilities and doctors you can and see what they say. And then make a decision. Also, remember, no decision is a decision in itself. Best of luck on your journey.

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  • oakhilldiver
    oakhilldiver CSN Member Posts: 1 Member
    #26
    https://csn.cancer.org/discussion/comment/1719187#Comment_1719187

    I chose radiation for prostrate cancer. I have had 6 scar tissue removal procedures in 10 years. It is closing up again. I am DONE with these useless produces. How can I get rid of the scar tissue permanently.

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  • Wheel
    Wheel CSN Member Posts: 300 Member
    #27

    oakhilldiver,

    I am very sorry to hear of your continued scar tissue build up from Radiation. I know that strictures caused me concern when I evaluated Radiation, although reportedly that long term side effect is small, but does not matter how likely when it happens to you and you are in that small group. I remember something about the possibility of reconstructive surgery but need an expert at that, that do exist just finding them. Good luck

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  • Clevelandguy
    Clevelandguy CSN Member Posts: 1,403 Member
    #28
    https://csn.cancer.org/discussion/comment/1726449#Comment_1726449

    Hi,

    From what I have read if you surgically remove scar tissue more will regrow in the same area as you have proven. I would get a recommendation for a therapist who specializes in scar tissue remediation. From what I understand it’s more of a loosening up the scar tissue lesions and not removing them if that makes sense. There are different techniques that can help reduce the stiffness/tightness but you will need find some techniques for your specific case. Good luck…..

    Dave 3+4

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  • ALDARR777
    ALDARR777 CSN Member Posts: 17 Member
    edited March 24 #29

    I say this to you ok, ASK question ALWAYS.Dont let your Onchologist run YOUR show, You have to be a TEAM. TRUST is a must in these serious situations but 🙏 I pray for you all. I have lived with MY Prostate cancer for 22 years now, I was fortunate to have had an Excellent Onchologist Team when I was diagnosed with my Prostate cancer . I have found that living my LIFE not living in the Shadows of my Illness has worked for ME, and my faith in God. [content removed by CSN] Work Within your ability to monitor the treatments they have you ON and if you don't feel like it's working for you, Change Onchologist!! No one is right all the time that includes your Doctors if it's not working in YOUR own interests!! May God bless you and keep you and keep your HOPE alive and fight to live your life as full as you CAN! You can message me anytime you wish I am here to help anyone that needs help I am a Cancer Society Survivor just like YOU , let's make our lives mean something for people who may NOT have anyone else to talk too, AMEN brothers

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  • VascodaGama
    VascodaGama CSN Member Posts: 3,788 Member
    #30
    https://csn.cancer.org/discussion/comment/1726449#Comment_1726449

    Oak,

    I am sorry to read about your continued scar tissue due to RT.

    I wonder if hyperbaric treatment HBO would help in sealling/curing the affected tissues. It did well to me in treating cystitis and protitis as late side effects caused by my SRT of 2006.

    HBO treats by "fortifying" the local cells for the increased amount of pure oxygen reaching the area. It seems to be a safe therapy for several identical health issues of open wounds.

    I recommend you to do some investigations on the hyperbaric literature, consult a specialist and try discussing the matter with your oncologist.

    Best wishes

    VG

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