Decision on moving forward

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Comments

  • Trini2
    Trini2 CSN Member Posts: 14 Member
    #22

    Thanks for the feedback! Did you also have the hot flashes? And if so what did you take to help reduce it?

  • Josephg
    Josephg CSN Member Posts: 528 Member
    #23

    Yes, hot flashes are a side effect of ADT. I used Venlafaxine 150mg per day (75mg twice daily) to reduce the intensity of the hot flashes.

  • Old Salt
    Old Salt CSN Member Posts: 1,679 Member
    #24

    Way back you wrote that you would be getting radiation therapy. If that in fact happened, one cannot expect the PSA to go down to zero.

    Please clarify.

  • Steve1961
    Steve1961 CSN Member Posts: 699 Member
    #25

    please let me understand the whole story ..Originally your PSA was 79 I mean 79.00 and the cancer was still contained to the prostate. Wow thats pretty high …you had am mri add a PSM a scan, confirming that the cancer was still through the prostate You did radiation treatment along with hormone treatment and your PSA is down to 0.1. So I think I can speak for everyone ..you’re 60 years old and you’re still very young. I was diagnosed at age 58. If the cancer is truly contained to the and you expect to live 10 or more years, the gold standard of treatment is surgery Now the second option is radiation and the dreaded and last option would be the hormone treatment. So in my case, my PSA climbed slowly up to 8.0 I had two previous biopsies that showed nothing but then I went to a real doctor and they took 20 or so samples and they found cancer. Some suggested surgery some did it after further test testing they found out that I had an aggressive form of cancer called cribbiform so I chose the radiation treatment, but they did not hormone treatment with PSA went from eight down to 0.8. It took three years then it started to climb back to 1.6 and the biopsy showed that I still had cancer. They are coming to find out now that the cancer that I had is radiation resistant so I was kind of like a and I knew it, but I was afraid of surgery At this point I was lucky enough to have It still contained to thea prostrate and I didn’t think twice I had the surgery done. And right now my PSA remains below 0. 01 now you can’t go back in the past with you, it seems like you’ve had radiation and you cannot have radiation twice like myself and you have done the dreaded hormone treatment and you are suffering from the side effects. My question is since the cancer is contained to the prostate why didnt they not give you the option to remove it or why did you not want to have it removed? It seems like you can still have it removed. I did it surgery And the side effects were not as bad as they say I go through about one to two pads a day and could still get an erection so I consider myself lucky. I wish to God I did it and didn’t have to do the radiation. I just hope I stay this way. I’m just a little confused by your whole story. I do wish you the best but wondering why not just remove it

  • Trini2
    Trini2 CSN Member Posts: 14 Member
    #26
    https://csn.cancer.org/discussion/comment/1724097#Comment_1724097

    Thanks, I’ll give it a try. ☺️

  • Trini2
    Trini2 CSN Member Posts: 14 Member
    #27

    https://csn.cancer.org/discussion/comment/1724122#Comment_1724122

    Hi Steve,

    Wow, sounds like you’ve been through a lot, my cancer is in my lymph nodes, not a tumor of sorts where you can have it removed I believe.
    I’m doing much better but these hot flashes are the worse!

    Thanks for your insight and let’s all pray for one another that we all can live a rightful age!!🙏🏽🙏🏽🙏🏽

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