Decision on moving forward

Trini2

Thanks for the feedback! Did you also have the hot flashes? And if so what did you take to help reduce it?

Josephg

Yes, hot flashes are a side effect of ADT. I used Venlafaxine 150mg per day (75mg twice daily) to reduce the intensity of the hot flashes.

Old Salt

Way back you wrote that you would be getting radiation therapy. If that in fact happened, one cannot expect the PSA to go down to zero.

Please clarify.

Steve1961

please let me understand the whole story ..Originally your PSA was 79 I mean 79.00 and the cancer was still contained to the prostate. Wow thats pretty high …you had am mri add a PSM a scan, confirming that the cancer was still through the prostate You did radiation treatment along with hormone treatment and your PSA is down to 0.1. So I think I can speak for everyone ..you’re 60 years old and you’re still very young. I was diagnosed at age 58. If the cancer is truly contained to the and you expect to live 10 or more years, the gold standard of treatment is surgery Now the second option is radiation and the dreaded and last option would be the hormone treatment. So in my case, my PSA climbed slowly up to 8.0 I had two previous biopsies that showed nothing but then I went to a real doctor and they took 20 or so samples and they found cancer. Some suggested surgery some did it after further test testing they found out that I had an aggressive form of cancer called cribbiform so I chose the radiation treatment, but they did not hormone treatment with PSA went from eight down to 0.8. It took three years then it started to climb back to 1.6 and the biopsy showed that I still had cancer. They are coming to find out now that the cancer that I had is radiation resistant so I was kind of like a and I knew it, but I was afraid of surgery At this point I was lucky enough to have It still contained to thea prostrate and I didn’t think twice I had the surgery done. And right now my PSA remains below 0. 01 now you can’t go back in the past with you, it seems like you’ve had radiation and you cannot have radiation twice like myself and you have done the dreaded hormone treatment and you are suffering from the side effects. My question is since the cancer is contained to the prostate why didnt they not give you the option to remove it or why did you not want to have it removed? It seems like you can still have it removed. I did it surgery And the side effects were not as bad as they say I go through about one to two pads a day and could still get an erection so I consider myself lucky. I wish to God I did it and didn’t have to do the radiation. I just hope I stay this way. I’m just a little confused by your whole story. I do wish you the best but wondering why not just remove it

Trini2

https://csn.cancer.org/discussion/comment/1724097#Comment_1724097

Thanks, I’ll give it a try. ☺️

Trini2

https://csn.cancer.org/discussion/comment/1724122#Comment_1724122

Hi Steve,

Wow, sounds like you’ve been through a lot, my cancer is in my lymph nodes, not a tumor of sorts where you can have it removed I believe.
I’m doing much better but these hot flashes are the worse!

Thanks for your insight and let’s all pray for one another that we all can live a rightful age!!🙏🏽🙏🏽🙏🏽

mac2237

Hey all,

Just finished SBRT 5 sessions and received 2nd 3 month Lupron shot. So far so good, Hot Flashes are the most noticeable side effect so far. I too had many questions and went back and forth on the type of treatment. For those that need info, im 56 somewhat fit, eat pretty healthy and didn't have any symptoms. I was diagnosed in 2023 and was holding fast on active surveillance. My PSA wasn't too high 4.88 but went up to 6, so along with my urologist I decided to get treatment(did not want to lose the window). MRI, PSMA, Genome test all showed good signs of being contained and low risk of aggression, but still in the 3+4 unfavorable intermediate due to both sides and the amount of lesions in each. For all of us going through this, it's very confusing, overwhelming and yes scary. But do your due diligence, read and research and choose what's best for you, not what your surgeon thinks is best. I went to some of the best centers and was told, surgery was my best option. Even a couple of Radiation Oncologist pointed me towards surgery. Some based everything on "the gold standard" surgery not on my test results. Until one surgeon and 2 other oncologist looked at all my numbers and said I was a good candidate for SBRT and gave me the choice of being on short term ADT(Lupron). I got to ring the bell of completion today and hope for the best. More than happy to answer any questions. Good luck and God speed to all

Clevelandguy

https://csn.cancer.org/discussion/comment/1724074#Comment_1724074

Hi,

Is your PSA test the ultra sensitive type, if not I would recommend it. When tracking reoccurrence its nice to be able to determine levels below .1u. Mine has hovered around .05 levels over the last several years. Usually less than .1u is considered undetectable. Even though zero is the goal I don’t know of anyone who has been there since your body will always produce a very small amount of PSA, hence the ultra sensitive test to find out your “true” rock bottom. Good luck…….

Dave 3+4

JackWest

Hi all,

I am back on here. Message me, as I would love to catch up.

Jack