ROLL CALL 2024

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  • DarcyS
    DarcyS Member Posts: 81 Member
    #22

    Checking in Jan. 2024. Husband still doing great almost 12 years after treatment for pyriform sinus ssc stage 4. We continue to enjoy life and hope his journey through cancer helps others.

  • wbcgaruss
    wbcgaruss Member Posts: 2,482 Member
    edited January 29 #23

    wbcgaruss (Russ) here. I am in Southeastern Pennsylvania. I was reading this forum and getting quite a huge support and info during my first cancer, throat cancer in 2012/2013 but did not join till I got my second cancer in 2018 a small spot on my tongue which was taken off surgically. I ended up with a third cancer of the lymph nodes of my neck in 2019 and was operated on at Hershey Medical Center in Pennsylvania for that. I have the usual side effects of dry mouth and neuropathy, etc. It is only by the Grace of God and his hand in all this that I am typing to you today. NEGU (Never Ever Give Up) Carry on everyone and God Bless You All

  • Carn
    Carn Member Posts: 4 Member
    #24
    https://csn.cancer.org/discussion/comment/1712745#Comment_1712745

    I had hpv positive scc cancer in my tonsil followed by surgery without clear margins then 3 big chemos and radiation 6 years ago. I live in the Smoky Mountains of east TN and received excellent support and care traveling to UT hospital cancer center in Knoxville TN. I had wonderful doctors who even encouraged a ski trip which meant a lot to me between surgery and treatments. I was blessed to be able to completely isolate and sleep and binge watch shows during and even after treatment and I believe that the 3 months of complete rest and pampering by my husband and family played a part in my recovery. It took a year to feel as strong as I was before cancer. The years of scans and down the throat checkups. (I forgot to hit post comment so this is a little late civil Matt! 😊)

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #25

    I got a request to post so....

    This year will mark 11 years since finishing treatment for Stage IVa H&N cancer. 6 years since being deemed cancer free. I'm doing well. I've learned to live with the side effects and the 'new normal' and life in general has been good. Thankful for the team at Johns Hopkins for saving my life. Hope all are doing well!

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #26

    Skiffen16,

    Very good to hear from you. Your art is outstanding, I am very impressed. Do you still go fishing on occasion? If I could I would have gone to Florida for a vacation, but not much chance of me going anywhere now. Talk to you later.

    CivilMatt

  • NJShore
    NJShore Member Posts: 429 Member
    #27

    NJShore Here! (Kari & Dan)

    Dan is our Stage 4 Tonsil Cancer survivor, 30 rounds of Radiation, 6 weeks of Cisplatin (2012) Long term side effects.. still a diabetic (was not before cancer), stretched his throat 2 times so far and his latest scare we think is benign. He has a lesion in his esophagus, very close to his stomach. It will be removed in the middle of March. The one biopsy they did, fortunately came out negative. Hoping the entire thing is.

    My only head and neck cancer was thyroid Papillary Cancer, just had another ultrasound to confirm it is not growing back. Then, I just had cancer #4 discovered and removed, this time, just Moh’s surgery. Then in two weeks, I will have one salivary gland removed - it was never cancerous however our same cancer docs are doing the job - it was always troublesome with getting clogged. Having it irrigated several times, I am just getting rid of the source of very annoying issues.

    Yet, we are here and gratefully checking in. A year ago we moved back to NJ (not the shore side), only 6 miles from our Doc’s in Philly, there is some comfort in familiar faces where it all started in 2012. Otherwise we are doing good, still working on re-landscaping our new-to-us yard, slowly making some updates in side the house. Taking our time and enjoying being near Dan’s siblings, our children and their children. We have 5 grands and loving every moment with them.

    Matt, so grateful to you for your years of service in keeping us all together! I have looked forward to your emails every year, I hope if you are up to it, please continue.. to just say hi. ❤️

    Russ, big shoes to fill! I bet you’ll do awesome 😁 Thank you and good luck!

    Kari (& Dan)

  • smudged
    smudged Member Posts: 1 *
    #28

    Checking in first time. Throat cancer thriver since 2009. I'm jot just surviving, I'm thriving! Was full time employees until Jan, job closed and frustrated that my voice may be hindering my job search.

  • wbcgaruss
    wbcgaruss Member Posts: 2,482 Member
    #29

    Well, smudged, so glad you checked in with us, so glad to have you in our little club no one really wants in. So glad for you that you got rid of your cancer in 2009 and have not seen it since and hoping you continue to stay CANCER FREE. Don't give up on a job if you want one, keep applying and you will find a job and place that fits you, never give up, that is our motto here.

    Our Motto On Here is NEGU (Never Ever Give Up)

    Wishing You The Best

    Take Care, God Bless

    Russ

    th-1122490424.jpg


  • Remington25
    Remington25 Member Posts: 93 Member
    #30

    47M from ND. It was a very painful recovery but I absolutely marvel that I would do it again if I had to. My saliva is probably 50-70% of what it was before radiation, my neck range of motion is 95%, my taste is 95% and I have felt "normal" for 2 years.

  • Kenny-
    Kenny- Member Posts: 99 Member
    #31

    Civilmatt,

    Kenny checking in here - 8 years survivor. Currently in Colorado.

    NPC T2N0M0, 70/50 rads + cisplatin + adjuvant cisplatin + 5FU. Completed Feb 2016. It's been a while since I posted.

    Hope everyone is doing well, hang in there and you can do this!

  • Hard12Find
    Hard12Find Member Posts: 218 Member
    #32

    hey all, still here after 11+ years, diagnosed with SCC lt tonsil tumor with metastisis, chemo, and radiation. Doing pretty well but my swallow finally gave up completely about 2 years ago, so on a feeding tube for everything, gives me reflux, and I get aspiration pneumonia, every 2 to 3 months. Most of my lower teeth succumbed to radiation caries. Other than that I try to live as full of a life as I can, spend time with grandkids, do a little woodworking, and boating when I feel up to it. Glad to see some familiar names on here. Matt you are amazing....thank you for your dedication to this site.

  • BryanB
    BryanB Member Posts: 2 Member
    #33

    Just finished 4th year CT scan, blood draw, etc. review and still cancer free! Had HPV+SCC with a very large tumor in right neck and base of tongue. 3 very large doses cesplatin, 35 x radiation and follow up radical neck disection. Returned to largely normal life, some side effects. About 75% saliva, some things still taste weird, cramps in neck occasionally, and I swear my memory got worse (58 though so who knows, age?) but overall: very happy to be alive! Voice great, swallowing good, cruising through life. Thank you God, great staff at Markey Cancer Center in Lexington,KY and loving family and friends!

  • Logan51
    Logan51 Member Posts: 470 Member
    #34

    Logan51 checking in. Still kicking as FT-dependent since 8/2019, and haven't needed the trachea tube installed yet. Can still golf, and do, 15-1/2 years after diagnosed so that's also good. Life for me has been better, worse, and where I'm at right now is all right by me. Hope everyone else can say the same.

  • rush1958
    rush1958 Member Posts: 223 Member
    #35

    Hi all! Just checking in. I'm doing well. Retired from the railroad and moved to a rural farm community in Marysville, KS. Still NED after 14 years.

  • Unknown
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