A newer phase in my Systemic treatment now with metastasis in bone

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Comments

  • SV
    SV Member Posts: 183 Member
    #42

    congratulations on the PSA drop. Your incontinence will probably correct itself when you go off of ADT.

  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,346 Member
    #43

    Sorry for the difficulty that you are experiencing. Hopefully the kegels will help. You may wish to consult with a physical therapist to make sure that you correctly do the kegels
    I don’t know what the cause of incontinence is in your case, but, years afterward, incontinence can result from surgery.

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #44
    https://csn.cancer.org/discussion/comment/1716455#Comment_1716455

    Thanks Old Salt,

    Yes, I wasn't expecting this occurrence after my experience of twelve years ago on ADT. This is a very inconvenient situation in my social life. I have rejected golfing ⛳️ invitations or hiking in group. Always mentally worried if I cause or smell urine.

    How about you, how is things going in your 80th ?

    Ths

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #45
    https://csn.cancer.org/discussion/comment/1716459#Comment_1716459

    Thanks for the opinion.

    I never heard about such late side effect from surgery. The oncologist commented about a side effect from radiation as it tends to be progressive. My wife says that it is aging.

    I believe that this is a cause of the low count of testosterone/androgens in circulation. The problem may be more prominent due to the missing urethra sphincter (or part of it), dissected in the prostatectomy of 2000. The bandit was detected this time at three tiny tumors at the urethra which tissues are now in a "dormant" status.

    Regarding kegels, the bladder holds about 400cc so that I force 5 or 6 stops each time I pee. The ocasional incontinence occurs when standing, when I feel it passing at the tip of the penis, leading me to contract the pelvic floor muscles. Sorry, to late.

    I have no urgency during the day and at night I get up about 3 or 4 times but I am dry when sleeping.

    Ths

  • Josephg
    Josephg Member Posts: 460 Member
    #46

    I'm sorry to read about your bout of semi-incontinence, Vasco. My incontinence started 10+ years, right after surgery, and became the new normal for me a number of years back, and my quality of life adjusted to it. I don't even think about it now, except to remember to buy my box of Depends (IMO, the best brand to buy) on time.

    I'm glad to see that your PSA is under control again, as that is the most important aspect of your current phase of your PCa journey. Stay the course and continue to look forward to your next hormone vacation. I will be seeing my Oncologist this week for my 3 month blood draw, and I'm hoping that my PCA remains undetectable, and that my Testosterone rises above 26, which it was 3 months ago. This visit will mark 18 months since, I ended my 2 year hormone cocktail protocol of Lupron, Zytiga, and Prednisone.

  • Clevelandguy
    Clevelandguy Member Posts: 1,206 Member
    #47
    https://csn.cancer.org/discussion/comment/1716463#Comment_1716463

    Hi Vasco,

    I too drip a drop now and then when I am hiking or lifting heavy objects. Dry when sitting or sleeping, so far a light Depends pad covers 99% of my needs. If I am going to be on my feet for several days in a row I switch to max pad which does a great job. As your wife stated it could be a combination of events, age, ADT drugs, ect. I have heard that some guys use a light pad inside of an adult diaper for good protection. There are also several new types of deodorants here in the states for all over your body which will help with odor. Hate to see you not golfing and hiking because of leaks or odors. Maybe a litle extra splash of cologne might help? Remember don’t back down but adapt. Good luck……..

    Dave 3+4

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #48

    Vasco,

    Delighted in your decades-long successes against 'The Bandit.' I thank you for checking in,

    Max

  • hunter49
    hunter49 Member Posts: 247 Member
    #49

    Vasco the beast always has a price but you seem to be handling it well. Did you ask your doctor about any type of surgically implanted clamp?

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #50
    https://csn.cancer.org/discussion/comment/1716464#Comment_1716464

    Yes, I will be waiting for the news but I belive that we will be celebrating a remission again. 🤞✌️

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #51

    Thanks Dave, it seems that I could adapt better to ED and annoying fatigue than to this most inconvenient situation.

    Apart from the clip that gives me the assurance of being dry while walking or caring about my veggy garden, I use a pad. The clip tends to uncuff when seating and the penis retracts. Difficult to adapt.

    Smelly or not, I will survive.

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #52

    I am still waiting for that consultation in the NHS. I am aware of implants discussed by our "comrades" here in the forum but I would like to wait for the timing when I stop ADT. I am convinced that I will get to normalcy then.

    Just hoping 🙂

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