Endometrial SEROUS carcinoma
Comments
-
If you live in a medical cannabis state, there a number of creams and balms that help. Mary's Medicinals also has THC/CBD patches that were very effective for me. None of the creams or patches will make you high. I took them before bed, and they really helped take the edge off the pain. Long-term acupuncture resolved all the pain, so I no longer need anything, but the THC/CBD balms and creams were so helpful when I did.
Good luck.
0 -
You're very welcome. It was acupuncture that took care of the pain, over time. I went twice a week for about 18 months during and after the first time I was in chemo, and have continued that schedule over the past four or five years to minimize and then get rid of neuropathy pain from additional chemo.
When choosing medical cannabis, it's important to get the right combination of THC and CBD. CBD alone was completely worthless for me.
1 -
Hello I was just diagnosed with Uterine Serous Carcinoma. No deep knowledge yet as to the details…. Just worry. I'm going for a CT scan this week and then seeing the specialist next week. If this question has been posted previously, I apologize for asking again, but is there a list of questions that should be asked? Also dkbbjn - how are you - It appears to be more than a month since your last post and I appreciate that you started this thread. I do hope you are doing well. Best Regards All.
0 -
Hi! I'm so sorry that you have had to join this group. My latest scan was on March 18 and it showed that the cancer was slightly smaller so I was thrilled. To me, when there is no spreading of the cancer, it's a win. My oncologist did suggest doing 3 more chemo sessions along with immunotherapy but I decided I wasn't willing to have any more chemo. I was just too tired of not feeling well half the time. I am continuing with immunotherapy (Jemperli, which is the name brand of Dostarlimab) every 6 weeks instead of where I was receiving chemo with immunotherapy every 3 weeks. I am also still taking Fenbendazole without the knowledge of my oncologist. As I've stated before, after receiving a grim prognosis in Sept 2024, that's when I started the Fenbendazole. I still can't say for sure if that's what's causing the positive outcome on my last 2 scans or not but I suspect it might be. You might want to check into it and look up Joe Tippens, he's the one who first went public with taking it with positive results but I understand it's scary to do something that your oncologist isn't recommending. I delayed it for a long time because of that.
I'm pretty sure they'll start you with a hysterectomy and then chemotherapy. That's their first line of defense for everyone as far as I know. It is very scary but I have had 3 and a half years since my first diagnosis and I've never felt bad or in pain other than feeling bad from the chemo so I hope that's some encouragement. I should be having another scan in June or July.
I really don't have a list of questions. Maybe someone else can help with that. I'm really glad you found this website and I would love to hear about your journey as you go through it. We can all learn from each other. Sending a hug and prayers your way.
0 -
Thank you for your update and all the information you've shared. I'll update periodically as things progress. Hugs and Prayers to you as well.
0 -
hi Jacdemelwa. I’m sorry you are here too! My advice is to think of your own questions because that’s where you are and everyone has different previous knowledge levels, concern and information preferences. I wouldn’t pressure yourself to be “ready” for this first doctor consult, other than being ready to listen carefully, take notes copiously, and ask questions if you think of them, but more so try to focus on the key points the doctor is giving you and let them structure the information. There will be a lot to learn and process. You will probably receive a binder of information receive a training of sorts. Excellent advice I received was to keep my own notebook, a spiral one, to record my notes, questions, and concerns along the way. I kept this by me constantly and used it in appointments. In the lead up to every appointment I talked with my family about where we were at this time, asked for their questions and concerns which I shared at each appointment. I brought my husband, until it didn’t seem necessary and I made sure I got his questions each time because we come at things differently.
And thanks for the update dkbbjn. It’s fabulous the tumor is smaller! I’m still on Jemperli as well. My CTs have remained clear, surprisingly. I didn’t think I would get this far. My Signatera marker turned positive about 9 months ago. It had been negative since my second chemo round up to 6 months after end of treatment. However it has stabilized and seems to actually be decreasing. My doctor thinks the Jemperl is probably responsible for how well I’m doing. My tumor is/was MMR deficient so the Jemperli is supposed to work especially well in my case. I don’t recall if yours was MMR deficient also.I see your post about neuropathy. I understand this is during a time you are taking maintenance Jemperli only. I had some neuropathy in fingers and toes initially during chemo then used ice shoes and mitts and made myself flavored water with a tsp of L-Glutamine powder 3 times a day as directed by my oncology team (evidence based, on my chemo handout — to prevent and repair nerve damage). And walked twice a day as they also advised. My issues went away soon after but just recently I have one tingling foot and lower leg. My oncology team says that they have not been seeing neuropathy with their maintenance Jemperli patients, so we surmise mine is not related to the Jemperli. The doctor suggested acupuncture though and gave me a referral which I will follow up on. I started with the L-Glutamine again. I work at home and sit too much and am trying to get up and work in different positions. I walk briskly twice a day. So far there’s no change in so I am thinking acupuncture may be my next step.
1 -
You have excellent information! I'm glad you told her about keeping a spiral notebook. That is something I did also and is great to be able to go back and review notes. I'm glad to hear you're doing well also! I also have started back walking 45 minutes to an hour 5 days a week, hoping that would help with the neuropathy. I've been taking Gabapentin for about 6 weeks for neuropathy and really don't feel a difference. Thank you for your information you shared on that.
The postmenopausal spotting was what caused me to see my pcp but I had no idea that could be a sign of cancer but fortunately, she sent me right away for a pap smear.
So good to hear a positive report! It's very encouraging! Take care and keep in touch!
0 -
I'm sorry that it was not taken seriously. This happens all too often. In my case it was. I reported it the second time it happened over a six week period (just two weeks ago was the second one) and the blood test was scheduled immediately. CT scan done yesterday. Now for a long few days until the Dr visit next week. Best Wishes.
0 -
Yes — I reported spotting post-menopause to my pcp. Pre-menopause (18-20 years ago), I had large fibroids with very heavy periods. I assumed that the spotting was related. My pcp made no comment about endometrial cancer. And he missed an early sign in a CT Scan with contrast done 5 years ago for kidney stones which my surgeon said showed the beginnings of a problem. Knowing what I do now, it seems to be apparent that general practitioners and internists need much more education on this subject and that women need to be made aware that post-menopausal bleeding needs investigation by a qualified gyn.
0 -
Update - Met with Dr's and Surgeon today. Hysterectomy surgery next week. It's about 7 weeks since the first time I had spotting. Having Chemo is likely, even though this was caught (in everyones opinion) very early. No choice but to move forward. I know I have a great team that will help me. That's it for now. Will update again in the future.
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 122.3K Cancer specific
- 2.8K Anal Cancer
- 452 Bladder Cancer
- 310 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 399 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 678 Leukemia
- 799 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 240 Multiple Myeloma
- 7.2K Ovarian Cancer
- 67 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 740 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards