Vagal Nerve Damage from Radiation

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  • SuzJ
    SuzJ CSN Member Posts: 451 Member
    #22

    To be honest I thought I was losing my mind.

    The head of the radiation Dept just said one day... I think you have a rare unknown side effect. They are running studies, I'll add you!

    Talked to a wonderful dr, who has since retired, who knew exactly what was going on!

    If you feel faint, drink something that's ice cold, it raises your BP a little, but enough

  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,570 Member
    #23

    Hello, Hard12Find, I believe this is hard to diagnose.

    I am thankful God has blessed me with the information and abilities to share it with everyone.

    I am so glad this revitalizes you and gives you hope and a new direction.

    Wishing You The Best

    Take Care, God Bless

    NEGU (Never Ever Give Up)

    Russ

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  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,570 Member
    #24

    Hi, all. After this thread came up and discussed the Vagal Nerve, I remembered a post I made a while back from information I came across on another site discussing a similar happening, I think. I don't know if the 2 are related or connected, but I thought I would post the link to the thread, and anyone who wants can check it out. I am always hoping it helps someone.

    "Baroreflex" Failure" A Rare Late Effect Of Radiation Treatment

    I had radiation and chemo for tongue cancer in 2013-2014. While I am now cancer-free in 2020 I am suffering from Baroreflex Failure, a rare late effect of radiation treatment. Basically, it means that all control of my blood pressure is now gone forever. My systolic readings can range from 65 to 235 for no reason, all within an hour. There is no treatment, but some management can be achieved through medication. I can't find anyone else who has been through what I am experiencing. I am now a ticking time bomb, in fear of my life even while being cancer-free.

    Link To Complete Thread…

    https://csn.cancer.org/discussion/326508/baroreflex-failure-a-rare-late-effect-of-radiation-treatment#latest

    Wishing Everyone The Best

    Take Care, God Bless

    Russ

  • DBauer15
    DBauer15 CSN Member Posts: 2 *
    #25
    https://csn.cancer.org/discussion/comment/1722230#Comment_1722230

    Russ , I wish only good things for you and that God intervenes into you life.
    I’m suffering the same symptoms, but at a much lesser degree… meds seem to be helping, but now I have negative side effects from those.

  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,570 Member
    #26

    Hello, DBauer15, and welcome to the CSN H&N discussion forum.

    Thanks for the well wishes for God's Blessing and help, and protection. I know he is watching over me.

    I would like to send the same blessings back to you.

    Also, I want to clarify that I do not have the Vagal Nerve issues or the "Baroreflex Failure" problem.

    I had seen them mentioned on another forum and had not seen them mentioned here, so I made a posting to inform the folks here.

    To my understanding, it can be very difficult to diagnose and can make dealing with it difficult at times.

    I hope you are able to get help for your situation and that it is not too difficult to handle.

    Here is another link to look at

    BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER

    https://csn.cancer.org/discussion/327053/blood-pressure-instability-from-radiation-therapy-for-head-and-neck-cancer

    DBauer, wishing you good days ahead.

    I would also recommend you check out the Superthread at the top of the head and neck home page there is loads of information in there with links and you will find it helpful.

    Also, our motto on here is NEGU (Never Ever Give Up)

    Easy to say but not always easy to do.

    Wishing You The Best

    Take Care, God Bless

    Russ

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  • DBauer15
    DBauer15 CSN Member Posts: 2 *
    #27
    https://csn.cancer.org/discussion/comment/1723495#Comment_1723495

    thank you for the response and new avenues of research…. 🙏🏻

  • Logan51
    Logan51 CSN Member Posts: 486 Member
    #28

    Very interesting…A man who never weighed more than 150lbs., high blood pressure was and still is not an issue with me. However, about 3 years ago- with no change in the meds I was taking- my typical 115-120 over +/-80 blood pressure consistently came up in the 95 over 62 range. And now it seems like every time I go to a Drs.' Office they have to take my BP more than once because it's so low- like 88 over 52 of recent. Could this be the cause?

    This is why this Forum is essential- sharing what we experience to help others. My thanks to all of the above.

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