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Angiosarcoma

jbeck7406
jbeck7406 CSN Member Posts: 3 Member
edited March 2023 in Breast Cancer #1

38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all that yet, I’m a bit worried . I live in Nebraska and am hoping to see a specialist at Mayo Clinic in hopes of a doctor reviewing my case to get the right treatment. Only problem is they don’t take my insurance .. it’s just a scary thing not knowing the how’s and why’s and what to do next …

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Comments

  • pennycount
    pennycount CSN Member Posts: 6 Member
    #2

    Hi Jbeck,

    I diagnosed same cancer in the right breast April 2022, Start Taxol 6 round till Nov, and mastectomy in December 22. they don't have standard procedures for Angiosarcoma since it is so rare, the primary angiosarcoma often happen to younger people, i have done several petscan and CT scan before the surgery. I did genetic testing too. I connected with Corrie painter on twitter, she was very helpful, knowing her doctor did the same taxol + surgery 10 years ago. Hope my information helps.

    Best,

    Christine

    Corrie Painter, diagnosed at 36 - DetecTogether

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