Anyone chose mastectomy over lumpectomy????

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  • Desiree18
    Desiree18 Member Posts: 10 Member
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    Hi,

    I was diagnosed with Invasive Ductal Carcinoma stage II in August 2022. After my diagnosis I coversed with a friend who had just undergone breast cancer treatment and what I took away from that conversation was I wanted to do a bilateral mastecomy. She had done a lumpectomy first and like others on this post had to go back and have the bilateral anyway. I was firm in my decision through chemo which I did as a first treament measure to shrink the masses in my breast and lymphnode. Then it was time to meet with the surgeon. Ooph, that's when things got real for me. I'm not going to lie, I was freaking out on the inside. I started to question if I was being too aggresive with my choice. It also didn't help that my oncologist and the surgeon had differing opinions on what should happen next. My oncologist preferred I get the lumpectomy first; she was afraid of any complications from the surgery delaying my last course of treatment (radiation & more chemo if needed). The surgeon was all for the bilateral stating it would be more challenging with regards to the blood vessels and reconstruction after radiation. I'm a spiritual person so I just prayed on what I should do and ultimately decided to follow my first mind and proceed with the bilateral. My surgery is scheduled on 1/17/23. I'm nervous about surgery just because it's a major procedure but confident with my decision. I'm claiming all will be well. The pathology will come back and there will be NO MORE CANCER! I will get my radiation and come spring my new breasts and sucked stomach, and will continue my life!

  • staceyelliemay
    staceyelliemay Member Posts: 5 Member
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    Hello pls9559

    thanks for sharing

    just curious you mentioned found more aggressive cancer during surgery. Did you have biopsy or MRIs before surgery ? The reason I asked, is I am having bilateral mastectomy with reconstruction surgery on 1/11/23. diagnosed with DCIS in RB in Oct. Then In Nov. did MRI with contrast and they found cancer in LB confirmed by another biopsy. Both biopsy’s indicate stage 0 DCIS. The surgeon will take lymph nodes during surgery. I guess my question is the likelihood of more advanced cancer found during surgery. Both surgeons have indicated … high chance of no chemo or radiation because stage 0 and I’m guessing from the MRI results. Curious about your experience! Thanks Stacey

  • jazalea
    jazalea Member Posts: 27 Member
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    All the decisions are so stressful. How can you be sure you are making the right decision when you can't predict the future. You just have to hedge your bets and surgery is scary, no matter what surgery you're having.

  • jazalea
    jazalea Member Posts: 27 Member
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    I am glad you are doing well. My mastectomy is next week and I am stressed out. I will be relieved when it is over.

  • staceyelliemay
    staceyelliemay Member Posts: 5 Member
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    Hello Desiree

    thanks for sharing your story. I liked you comment new breasts, sucked stomach and will continue life. And NO MORE CANCER!! You and I are on a similar timeline for surgery. I am having bilateral mastectomy with reconstruction surgery on 1/11/23.

    We Got This !! 💕

    Stacey

  • Desiree18
    Desiree18 Member Posts: 10 Member
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    Yes Stacey,

    You are right, we do got this! Feels good to know I have someone that is going through the same thing at nearly the same time. Hope I can lean on you as a sounding board as I hope you will do with me. Think it's very important we continue to verbalize our fears, concerns, & victories. I got your back girl!

  • staceyelliemay
    staceyelliemay Member Posts: 5 Member
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    Desiree, Yes absolutely ! I am happy we connected. During my pre-op appointment nurse was concerned about my high blood pressure. said if too high they might need to reschedule my surgery. ( no way). So I Made an appointment to see primary doctor to get meds or documentation that blood pressure hasn’t always been so high.

    My fears tend to enter my thoughts at night when I’m trying to fall asleep. During the day I try not to think about it, however as my surgery date gets closer it’s harder to push the bad thoughts away !! I’m ready to get it done and out !! Get on with my life.

    Stacey

  • Desiree18
    Desiree18 Member Posts: 10 Member
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    Oh yes, we don't want that BP messing up your plans. Glad pcp is able to get a handle on it. I also agree that the fears tend to occur at night. I take "gummies" when my mind is racing now. Has cannabis and melatonin in it ;-) During the day I'm too busy to even think about it as I'm still working, which is stressing me out more than surgery right now. I should've started my continuous leave the beginning of this month so I could just focus on my health! My job is a huge stressor not to mention the whole FMLA process. I still haven't received any reimbursement and I started intermittent leave back in September. I just want to focus on my health but no, what was I thinking!!!

  • jazalea
    jazalea Member Posts: 27 Member
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    My surgery is also on January 11 and it is the same surgery you're having. Bilateral mastectomy with reconstruction. I am getting spacers in and later on implants and fat tissue from my stomach.

  • Desiree18
    Desiree18 Member Posts: 10 Member
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    I will definitely keep you in my prayers as well! We will get through this together!

  • staceyelliemay
    staceyelliemay Member Posts: 5 Member
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    Hello Jazalea

    yes we will get through this together. I’ve only been on this site for a week but I am so glad that I reached out. Desiree’s surgery is set for 1/17 and you and I for 1/11. We can share our experiences and support each other along the way. I don’t know about y’all … but I am in a “crazy” last minute dash to get stuff done. Trying to think of everything before the big day. Any ideas or suggestions from others? For me, I bought button down shirts with pockets on inside, pouch to hold drains while in shower, special pillow for protection against fur babies, and large lounge pillow. I’m searching internet for any other items that may help.

    Stacey from Florida 🐊

  • jazalea
    jazalea Member Posts: 27 Member
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    Yes we should check in with each other after the surgery. Sounds like you're more prepared than I am! I should get a lounge pillow! I am just trying to get other stuff done, like grocery shopping, making sure all my bills are paid, arranging for care for my two kids. I took the day off of work tomorrow before the surgery. I plan on going for a nice walk in the park and cooking a bunch of food for myself to eat in the next two weeks.