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Fighting for Camila

FightingforCamila
FightingforCamila CSN Member Posts: 1 *
edited August 2022 in Leukemia #1

On December 31, 2016 our world was blessed with a 3rd child, a beautiful girl Camila. She has the dimples that make you want to smile and big glossy brown eyes that will brighten your day. She loves to go to school and loves to play with her sisters, cousins and friends.

July 1, 2022, was the worst day of our lives as we learned that Camila was diagnosed with Ataxia-Telangiectasia (A-T). A-T is a genetic disease that causes muscle control and balance loss, cancer, lung disease and immune system problems in children and young adults, shortening their lives. The average life expectancy for children living with A-T is the late teens to early 20s. Camila will progressively deteriorate and could end up in a wheelchair by the age of 10.

About one month later, on August 2nd, we discovered Camila has leukemia. The cancer has already begun to spread quickly causing her to start her chemotherapy just two days after we received the news.

While chemotherapy is our hope to cure Camila of leukemia, there’s currently no cure for A-T. Because of its extreme rarity, there are only about 500-600 confirmed cases of people with A-T in the United States.

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  • po18guy
    po18guy CSN Member Posts: 1,556 Member
    edited October 2022 #2

    I would suggest establishing a Gofundme account for donations to her care.

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