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Endometrial Cancer - IIIb - grade 1

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  • egrrl
    egrrl CSN Member Posts: 16 Member
    #22
    https://csn.cancer.org/discussion/comment/1699044#Comment_1699044

    That's a HUGE help. Thank you so much!

    EG

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  • egrrl
    egrrl CSN Member Posts: 16 Member
    #23
    https://csn.cancer.org/discussion/comment/1699045#Comment_1699045

    It's an enormous relief to find women who "speak the language" from the patient's perspective. I think some of my "discomfort" thus far comes from all my doctors being male. I'm not questioning their qualifications, just that there's a--call it a "communication gap." I'm seeing my Primary on Wednesday, and I 'll discuss this with her.

    Here and now, I'm so grateful to hear from y'all.

    EG

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  • Kaleena
    Kaleena CSN Member Posts: 2,088 Member
    #24

    Hi

    i was 45 when I had my hysterectomy. Then they found out I had cancer so had to go back in for staging. I was Stsge3a Grade 2. That was back in 2005. I did chemo snd then brachytherapy. They decided not to do pelvic radiation because how much scarring I get and said I would have more problems from the radiation scarring I have had several surgeries since then. 2 recurrences but no additional treatment. I turned 62 in June. I recently had Lysis of adhesions surgery in February to remove my scarring. I’ve had multiple lymph nodes removed also. A few which were positive

    im still working full time. Remember to ask questions. Also if ever you don’t feel right about your doctor get a second opinion. You have yo be your own advocate

    my best to you

    Kathy

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  • egrrl
    egrrl CSN Member Posts: 16 Member
    #25

    Kathy--

    First up: belated Happy Birthday! And thank you for some information that I didn't have about the combination of chemo and brachy. The more I read here--and I've only been around a couple of days--the more I realize how much information I don't have yet about going forward.

    You're still working--which is wonderful (assuming you like your work). I love my work--I've been a freelance photographer/writer for decades--and can't imagine retiring...I mean, what would I do but what I'm doing?

    There's definitely a second opinion in my future,

    Cheers,

    EG

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  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #26
    https://csn.cancer.org/discussion/comment/1699042#Comment_1699042

    EG, I think you can search this site by state. A quick call to the office should give you an answer.

    https://specialist.sgo.org/

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  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #27
    https://csn.cancer.org/discussion/comment/1699035#Comment_1699035

    Lacudia, I would say what I always say, but I hope you are working with a gynecologic oncologist. Really, a surgeon who has taken additional training would be great if there is one available to you, but of course, a doctor like it probably first.

    This is a step at a time process, so a surgery is usually early in the plan to determine just what really is going on before they would make a plan.

    Please take a breath. Let us know how the discussion goes ask them and us anything you want.

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  • egrrl
    egrrl CSN Member Posts: 16 Member
    #28
    https://csn.cancer.org/discussion/comment/1699078#Comment_1699078

    So very helpful! Thank you!

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  • Forherself
    Forherself CSN Member Posts: 1,050 Member
    #29
    https://csn.cancer.org/discussion/325513/endometrial-cancer-iiib-grade-1

    This is a link to an article about identifying serous cancers more likely to metastasize. https://pubmed.ncbi.nlm.nih.gov/33290354/

    I also wanted to. mention there are risk factors for metastasis. Tumor in the lower uterine segment is one that increases risk.

    And I wanted to mention that doctors give you the information and you have to decide. My husband was with me when I received my pathology results. He asked the doctor what she would do if she was sitting in my chair. It is a good question to ask. You will get their opinion when sometimes they hesitate to advise.

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  • egrrl
    egrrl CSN Member Posts: 16 Member
    #30
    https://csn.cancer.org/discussion/comment/1699094#Comment_1699094

    I've been lucky--my husband has been with me every step of the way. However, my gyn/onc is male, and when I asked him what he'd do if he were in my shoes, it was clear he was telling me what he thought I should do.

    I've been gathering information since the biopsy that lead to the hysterectomy that's leading.... It's taken me a while to know what questions to ask, and that's been frustrating for me.But, every day, I'm getting better at the "business" of cancer. I've contacted my PCP for a referral for an in-plan second opinion from a female gyn/onc.

    In the meantime, this board has been a sanity-saver as well as a wealth of real-life information not available on most websites.

    Many thanks...

    EG

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