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Likely.....
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I came across this today and I know that it will be useful for the many out there with Follicular. My onc and I are more-or-less viewing my NLPHL as Follicular NHL.
As I said, I get a the PET on 16th, and will probably have the results that night or by the next day.
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Max mine transformed from NLPHL to T cell rich B cell Lymphoma of course more aggressive so the ONC at MDA are telling me they are just treating me for the B cell. I am interested in why your ONC is treating it as follicular. I am definitely no authority on any of it. I get my next scan which will be a CT in May which will be 3 years from the date of my Autologous Stem Cell transplant.
I know you are having it rough so no need to respond. Prayers for you and awaiting your results.
Sandy
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Sandy,
NLPHL, when it reoccurs, usually does either one of two typical things: Remains NLPHL, or transforms into Diffuse Large-B, which as you note, is much more aggressive, but in most cases still quite controllable. Much less often, it can also become CLL. Mine simply has not changed from NLPHL. Your doctor is quite right (if I may be so arrogant as to agree) to treat you now as Diffuse Large B. What NPLHL never does is become indolent again after becoming a more aggressive (= 'high grade') disease. Because of the current movement away from regarding NLPHL as a HL, and because it is more like follicular NHL than any other known lymphoma, the reasoning is to treat it as akin to follicular. This has been an increasing line of thought for at least a decade now.
The trick is to keep watching NLPHL, because it can make the change to Diffuse B at really any time. You are lucky in a sense in that at least your doctor knows yours has transitioned and is treating it for what it now is.
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