Living with Li-Fraumeni Syndrome

lainiemjones
lainiemjones Member Posts: 1 *
edited August 2022 in Breast Cancer #1

Hi Everyone,

I am new here but not new to the cancer world. My journey with cancer started at the age of 18 months old. I then was diagnosed with Breast Cancer at 24, Melanoma at 25, Thyroid Cancer at 26, 3 recurrences of breast cancer and two recurrences of Thyroid, and also had Sarcoma at 30. Thankfully I am NED due in part to early detection. I live with Li-Fraumeni Syndrome a genetic disorder where I lack the P53 mutation gene. Just wanted to say hello and share that I am here if anyone needs support. I also have an Instagram @theearlydetective.

Comments

  • asauce26
    asauce26 Member Posts: 5 Member
    #2

    Hi there. I’m a lung cancer survivor, diagnosed in March 2020. Currently being worked up for breast cancer. I have a lot of cancer in my family…specifically an aunt who has had three different types too, they thought this gene may run in our family as well. Incredible to meet someone (well virtually) with this! I’ve only ever read about it. I hope you are doing okay :)

Discussion Boards