Cancer in multiple places
I always had Renal issues I have had kidney stones about 4 times a year for 25 years I am turning 45 in Mar. I am on allipurinol.
I am physical, Was a military contractor (specialist in heavy armoured machines) and worked rail road, Networ Admin, was Head of Robotic Maintenance in Factory who builds ATV's, worked in 2 nonprofits for many years then went back to Factory Welder (my night job, I own a small business also) My current job requirements are lift 40 lbs and up to push 100lbs (I often weld a ATV (4 wheeler frame) and hang then on hooks 9 feet up.. sometimes alone mostly with other hoist machines but sometimes just by grunt and heft ..I am currently off work bout 1 month and a week took 3 weeks to get the short term dissability setup and keep getting it renewed like every 9 days
I originally had hematuria and thought it was just kidney stones a colicy ureter (happened once years ago) but went to a knew doc who insisted on a ct, which showed things, and was referred to a Urologist who helped clarify, a tumor in the bladder, a tumor we thought in the center of the right kidney , the urologist then decided what we could do, was 2 procedures, a turbt, then biopsy right kidney and remove stones from left to setup the left kidney for success. The urologist asked I get a chest ct, I did and we found 2 small nodules on my right lower lung. we hope are from infection. A suspicion was that I had a bladder tumor and it spread to kidney.
During the first procedure turbt went well, tumor was non metastized and low grade. But the ureters were too small for tools and scope so Stents and spacer went in.
Next procedure maybe 9 days later Stones removed from left kidney well, and attempt to biopsy right, but appears the tumor is also on the outside. (this has me freaked, with the right lower lung havinf those nodules and bone islands? found in chest ct) (I did not understand results of the biopsy well enough to explain) I was told we needed to decide about chemo, if results were low enough we could got direct to nephrectomy I wanted this to avoid more time off work who at 6 months may fire me. (results were low enough so no chemo yet)
Third procedure was cystoscopy to remove the stents, about another 9 days later I think
On the 10th I will have a nephrouterectomy, removing right kidney and ureter.
hoping for a 2 day (overnight hospital stay)
I had friends who I met during this had been opened, cancer was seen, so they closed them up and told 3/7 months (since I started this 4 friends have passed from groups I was in)
Last year on feb 15th I was in ER for colorectal issue which was removed then put on a survielannce program every 3 years.
I have some questions, anyone have a opinion about PETscans? CTscans?
I am suspecting I may end up with a oncologist after this if kidney is removed and procedure goes fine? as a followup?
Will a CT once a year be enough to watch the lung bits? (I suspect that will be a surviellance thing too? )
at the start of this my gfr was 81, now it was 92 yesturday (stones removed, liquid low sodium diet, have not been on red meat in some time, 4 oz lean meat a day about, fish etc have been on a diet for years, but now sodium and such,, even watching sugar for pre-diabetic, I am within range, lost some wieght 5'8" 185lbs about also watching phosphorus and postassium , carbohydrates staying away from caffiene and hydrated (anything else I should watch?
Anticipating when I get out gfr will go in half? 40-46, but work back to .75 percent so 60 ish?
Nephorureterectomy will be robotic so hoping things go good
only meds I am on are crestor cholesterol and allipurinol and citric something to help break stones.
No ibuprofin, painkillers not even taking aspirin .
Any suggestions? should I insist on a petscan? Am I naive with the idea after this I will be cancer free? whats the smartest things I should do?
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