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CLL Discussion Group

luzycll
luzycll CSN Member Posts: 4 Member
edited February 2022 in Leukemia #1

I just found this group, thank you. If you are looking for information on CLL and treatments, HealthUnlocked has an active, very informative group. Go to HealthUnlocked.com and select the CLL group. Also check out BloodCancerUncensored.com

I am struggling through watch and wait, no treatment planned but lots of symptoms!

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Comments

  • CarlaK
    CarlaK CSN Member Posts: 1 *
    #2

    Hi New to the site.

    Has anyone in the group been to MD Anderson for clinical trial for CLL? Hubby has been on wait and watch for 5 years. The last 3 weeks lymph nodes have become very large. Oncologist is running all bloodwork again and getting CAT scan of neck, chest, abdomen and pelvis. We wanted a 2nd opinion before starting any type of treatment.


    She wants him to start a clinical trial at MD Anderson.


    What is your experience?


    How do we find out about house and travel that is not covered by insurance? We will be traveling from southeast Louisiana.


    Thank you for your assistance.

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