My NED is gone, I think

NewHere

Hope This Posts Abita

Some of this is what Anne said.  I tried to post this last night, but something happened where I could not longer post, edit, etc.  When it first happened I started typing outside of the board to keep what I wrote, in case it was more than one glitch. (Kept on having problems. Trying from somewhere else now.  If this does not post I give up ?) 

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I am sorry about your aunt Abita.

 

If it is a met, it means the primary cancer is out and about the rest of the body, including the lymph nodes.  If it is a primary tumor, it (could) mean the CRC is not spreading throughout the body and that removing the tumor may take care of it.

 

My understanding is that  the blood flow in the liver, vs the lungs, makes it "easier" for the chemo to get to tumors in the liver vs the lungs.  Not quite on point, but the general idea here:

 

https://www.sciencedirect.com/science/article/pii/S2211568414000941

 

A new method of chemotherapy administration by slow intravenous hepatic infusion (SIHCA) has been developed to treat colorectal metastases, which are inoperable from the outset and located only in the liver. Hepatic intra-arterial chemotherapy requires an intra-arterial catheter to be introduced either by laparotomy or percutaneously by radiology and uses drugs, which have a high, first pass hepatic extraction rate. These enable higher concentrations to be achieved within the tumor and therefore a better response to treatment than the same chemotherapy administered systemically (×5–10 for 5FU, ×4 for oxaliplatin compared to systemic chemotherapy) [6]

abita

NewHere said:

Hope This Posts Abita

Some of this is what Anne said.  I tried to post this last night, but something happened where I could not longer post, edit, etc.  When it first happened I started typing outside of the board to keep what I wrote, in case it was more than one glitch. (Kept on having problems. Trying from somewhere else now.  If this does not post I give up ?) 

 ####

 

I am sorry about your aunt Abita.

 

If it is a met, it means the primary cancer is out and about the rest of the body, including the lymph nodes.  If it is a primary tumor, it (could) mean the CRC is not spreading throughout the body and that removing the tumor may take care of it.

 

My understanding is that  the blood flow in the liver, vs the lungs, makes it "easier" for the chemo to get to tumors in the liver vs the lungs.  Not quite on point, but the general idea here:

 

https://www.sciencedirect.com/science/article/pii/S2211568414000941

 

A new method of chemotherapy administration by slow intravenous hepatic infusion (SIHCA) has been developed to treat colorectal metastases, which are inoperable from the outset and located only in the liver. Hepatic intra-arterial chemotherapy requires an intra-arterial catheter to be introduced either by laparotomy or percutaneously by radiology and uses drugs, which have a high, first pass hepatic extraction rate. These enable higher concentrations to be achieved within the tumor and therefore a better response to treatment than the same chemotherapy administered systemically (×5–10 for 5FU, ×4 for oxaliplatin compared to systemic chemotherapy) [6]

I thought that might be the

I thought that might be the case about the blood flow in liver vs lungs, but could never find science about it, but it makes a lot of sense, So maybe if I am patient, eventually they will go away.

Annabelle41415

AnneO1965 said:

Update

Ok, so it is cancer, goodbye NED. What kind of cancer? We don't know yet. My oncologist is sending me to a lung doctor to have a look.  If it's a secondary lung cancer, it's probably a cut it out with the likelihood of no chemo... If it's metastatic crc, it's cut it out with at least 6 months of chemo.. Probably folfox again...

So, as weird is this may sound, if you all could offer up prayers that it is lung cancer, I'd greatly appreciate it..

Prayers

You are remembered in my prayers.  Although you know you will be facing some type of hurdle, hoping that it is the lesser of your two outcomes.  Either way, you are in my prayers for the best.

Kim

Kazenmax

AnneO1965 said:

This is what I understood,

This is what I understood, but I could be completely wrong.  If it's lung cancer, it's small enough that they can cut it all out with little to no complications.. If it's a mets, it means the original cancer has spread, so the chemo and everything else didn't kill it all so it's almost like starting over...as I said, I could be wrong...

My case

I had CRC IN Feb 2016. Found two spots Dec 2017. Rather than do a biopsy, I said just get this out. My thoracic surgeon said said he would take enough margin for both types of cancer just in case it was secondary. The only difference would be the follow up treatment. Either way there would be chemo. I didnt want to waste any time with a biopsy so I had VATS Apr 2018. Been NED since.

Good luck!

k

AnneO1965

Okay, here we go again...

So it is a primary lung cancer... I have an appointment with the pulmonologist on the 4th for an effusion test, and am waiting on a call from a surgeon. Turns out they don't just go in an remove the nodule. They will be removing the whole lobe.. What type of surgery, I don't know yet... Will update when I do.

Trubrit

Oh my goodness!

While you pretty much knew it was one or the other, I just wished they could have told you it was all a mistake and was nothing. 

I want to come and hug you - and I'm not a huggy person.  My heart aches for all the new tests, surgeries, chemo that are in your future. But, having got through the Colon Cancer, you know there IS a light at the end of the tunnel, even if the road will be a rocky one. 

As they say in Lord of the Rings 'You have my bow, axe, sword, whatever'.  

Edit to say, you could start a new thread with this news. Just an idea. 

Tru

NewHere

AnneO1965 said:

Okay, here we go again...

So it is a primary lung cancer... I have an appointment with the pulmonologist on the 4th for an effusion test, and am waiting on a call from a surgeon. Turns out they don't just go in an remove the nodule. They will be removing the whole lobe.. What type of surgery, I don't know yet... Will update when I do.

Sorry Anne

I really wish it was just a glitch.  I had the lung surgery in 2016, a year after I had the colon surgery.

Compared to the colon surgery, my lung surgery was easy.  I was out of the hospital within 36 hours of check-in.  I was doing laps around the floor within 10 hours of srugery (give or take).  As you know, the quicker up and about, the quicker they spring you   They had to put a chest tube in, but it was more me being a bit freaked by it as compared to any discomfort.  Even having it removed was no big deal.  I don't believe I had a pain killer after I was released.  

For me it was an upper left lobe nodule and they did a PR thoroscopy W/Thoracoscopic wedge resection- was a 11cm x 4 x 2 cm lung wedge.  I had it done by the former head of thoracic surgery at MSK, who also did the surgery on RBG.  Not sure how much is based on the location of the tumor, the size of the tumor etc.  But they did not have to remove the lobe for me. Some information on it.  A couple of links about it.

https://emedicine.medscape.com/article/1894191-overview

 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5637948/

I started walking/running (not the real exercise program I started a year later)  when I got the news I was going to have the lung surgery.  I guess 3 or 4 weeks.  Plus they gave me a sporameter for breathing exercises.  They both helped by the time I had the surgery.