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Chadwick Boseman

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  • Bears70+
    Bears70+ CSN Member Posts: 5
    #22
    abita said:

    Are you NED?

    Are you NED?

    NO

    I wish that I was NED.  I tested positive twice for Braf VOOe.  Ras not mutant!  11 months on the triplet for Braf.  All it has done was to shink some of the nodules but that is going back to where we started.  Cancer is basically 10 or more  lung nodules this time around.  Next we will go to capox with Vectibix.  I have had oxy in 2016 for 10 treatments.  No lasting nueropathy but it may happen this time so it may not be many treatments. 

    We are all looking for answers.  Who knows why I was spared the aggressive form of Braf. 

     

    Like Care
  • Bears70+
    Bears70+ CSN Member Posts: 5
    edited September 2020 #23
    danker said:

    Duration

    Some of us have been surviving for a long time.  Look when Annebelle joined our special group.  I was 77 when I joined-am currently 88 with no end in sight. As the bible says "we know niether the day nor the hour"

    So just live it a day at a time!  Good luck to all of us!!!

    I agree

    with Duration!

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  • abita
    abita CSN Member Posts: 1,152 Member
    edited September 2020 #24
    danker said:

    Duration

    Some of us have been surviving for a long time.  Look when Annebelle joined our special group.  I was 77 when I joined-am currently 88 with no end in sight. As the bible says "we know niether the day nor the hour"

    So just live it a day at a time!  Good luck to all of us!!!

    Danker, are you NED?

    Danker, are you NED?

    Like Care

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