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Serous endometrial cancer (UPSC) - please give me hope

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  • yetti
    yetti CSN Member Posts: 82 Member
    edited December 2020 #82
    Dealing with those stares!

    hello bluebird 1.  I know just how you felt about those stares!  I'm  a stage 4 B endometrial cancer survivor I have been NED since April 2019!   I lost most of my hair. Blonde just past shoulder length. But thin and fine ! I had it shaved off when I had lost so much hair, I could see my scalp !  I hated being bald. I would rather be dead than bald again !  I tried to wear wigs. Very hot in south fla. So I wore the chemo caps. I was at a restaurant with my friend. This woman who also had a turban type hat walked by and looked at me and said Looks like we have something in common,  something about it just upset me, I started to cry.  My friend wasn't sure what to do or say,I went through a very difficult period. Bc of my bald head,  finally growing still short but thin, I guess it's better than bald  I do work at an elm school  I could not handle having to wear a hot wig  and hot mask  now  Bc of this covid !  I took a year off FMLA !  I went back to work work 5 mths  after my last chemo and being NED!  But now I worry about reccurence !

     

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  • BluebirdOne
    BluebirdOne CSN Member Posts: 658
    edited December 2020 #83
    yetti said:

    Dealing with those stares!

    hello bluebird 1.  I know just how you felt about those stares!  I'm  a stage 4 B endometrial cancer survivor I have been NED since April 2019!   I lost most of my hair. Blonde just past shoulder length. But thin and fine ! I had it shaved off when I had lost so much hair, I could see my scalp !  I hated being bald. I would rather be dead than bald again !  I tried to wear wigs. Very hot in south fla. So I wore the chemo caps. I was at a restaurant with my friend. This woman who also had a turban type hat walked by and looked at me and said Looks like we have something in common,  something about it just upset me, I started to cry.  My friend wasn't sure what to do or say,I went through a very difficult period. Bc of my bald head,  finally growing still short but thin, I guess it's better than bald  I do work at an elm school  I could not handle having to wear a hot wig  and hot mask  now  Bc of this covid !  I took a year off FMLA !  I went back to work work 5 mths  after my last chemo and being NED!  But now I worry about reccurence !

     

    It was the worst part of the emotional part of our treatment.

    Yeti, we all face the loss of our hair with differing feelings, but mine was more emotional than physical. I cared less about the actual hair loss than what it represented to others. Actually, the lack of hair was somewhat liberating at home, no more having to deal with it, stocking hat to the rescue. But I was retired at the time and had no where to go because I felt so tired and crummy. These things pass and we are onto other aspects of our survival, but it sure was difficult to get through at the time. 

    xxoo

    Denise 

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