Stage 4/Renal Cell Carcinoma
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Congrats on remission. Myskateabit said:deciding whether or no to stop treatments
I was diagnosed with stage 4 kidney cancer in March 2019; a large tumor on my left kdiney along with nodules in both lungs and some lymph glands. I had my left kidney removed and started on a new treatment plan of daily pills of axitinib(Inlyta) and infusions of pembrolizumab(keytruda) every 3 weeks. After about 7 months I was declared in remission with no signs of nodules in my lungs or lymph glands. I have continued on the treatment plan and subsequent CT scans show I am still in remission.
I am considering discontinuing the treatments so the side effects stop. Has anyone else had the same chemo/immunotherapy plan as me and gone off it after being in remissions? How are you doing? What about other chemo/immunotherapy plans; has anyone gone in remission and then stopped their treatments?
Congrats on remission. My husband was stage 4 in 2012. He has no evidence of disease since 2013. He has taken Inlyta since 2013. He doesnt plan on stopping. 3 different oncologists recommend not stopping. Psychologically its better for him to just keep on doing what works. He doesnt have any side effects. He takes 7 mg two times a day. 10 mg was too much. Maybe your dosage could be lowered. And to answer your question, there are people who choose not to do treatment when there is no evidence of disease. I think that is more common, than what my husband is doing. Most people do have some unpleasant side effects, and he doesnt.
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