Just diagnosed, high anxiety

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  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member

    Arranging for help at home

    My surgery is scheduled in two weeks and it will be done laporascopically. Althoug it is considered ambulatory surgery, because I live alone, the oncologist says he can keep me in the hospital overnight. That makes me feel a bit more secure. And I am arranging for some overnight help for my first night at home.  Going through pre-op testing, although some was already done for the D&C I had 2 weeks ago. My anxiety is still very high, but I just want this thing out of me!  Very weird to think about this nasty thing inside of me. Oncologist says that 90% of the women with this type of cancer who have a hysterectomy do not require further treatment, so I am focusing on visualizing myself in that 90%. But I won't know the grade, etc. until after the surgery. Thanks to all of your advice, I am stocking up on Tylenol, Gas-X, MIralax and Immodium , prepared for all contingencies. If you don't mind sharing, in your experience, how long should I expect to be bleeding after surgery? After the D&C, I was bleeding for 5 days, getting lighter each day.

    Elaine,

    Elaine,

    I think you will be surprised at how much you will be able to do on your own. Just remember not to lift anything over 10 pounds. Also, try to put things at a level in the fridge and on the counters where you don't have to reach up to get them. It would be helpful for you to have some precooked food ready as well. I only took 2 pain pills when I got home. And, I could have gotten along without them. The hardest part for me was getting up from the couch and bed for a few days. And, getting rid of the gas took a while.  Walking around the house helped a lot. 

    You got this! Please come back and let us know how you are doing. 

    Love and Hugs,

    Cindi

  • BluebirdOne
    BluebirdOne Member Posts: 656 Member
    No bleeding after surgery for me, either.

    I had a bit of pain, took only one pain pill, then was able to use over the counter stuff. Compared to my two C-sections, it was an absolute breeze. I did not have any gas. The nurses showed me how to roll out of bed rather than trying to sit up which really helped. It is a roll on your side and up movement. My biggest problem was incontinence. I could not tell when I was full so I ended up peeing on my self until I started to heal. Something about the rearrangement of the organs when they remove everything plus they thought I most likely had some nerve damage or disturbance. It got better over time, but I still do not receive the best signals for when I am really full. I also had a tough time with incontinence during infusion because they drip so much fluid into you that I was always going to the bathroom. I had stress incontinence before surgery so that contributed to my issues. Good luck to you.

    Denise 

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,516 Member

    Just diagnosed

    hello Elaine. I too was recently diagnosed July 19. biopsy revealed uterine cancer. Appt this Tuesday with ongologist. Had no symptoms until after biopsy was done over a week ago. My anxiety is high. I recently lost my only son January 1st of this year. I am still grieving and now I face this.  Good luck to you. 

    I am sorry

    (edit)  Denise, I am sorry about the loss of your son  I just can't imagine what you are going through.  

    Please ask to work with a gynecologic oncologist and know that this is your stop with questions.  

    I would suggest you try taking this one step at a time.  You certainly have a lot going on, but you are not alone on this cancer journey.

    (My apologies for my previous mis-post.  It was truly unintentional.)

  • Quilter_1
    Quilter_1 Member Posts: 117 Member
    I had no bleeding after

    I had no bleeding after surgery.  I thought I would, so I bought maxi pax’s pre surgery, anyone need them? 

  • BluebirdOne
    BluebirdOne Member Posts: 656 Member
    Quilter_1 said:

    I had no bleeding after

    I had no bleeding after surgery.  I thought I would, so I bought maxi pax’s pre surgery, anyone need them? 

    Shelters could probably use them.

    eom 

  • BluebirdOne
    BluebirdOne Member Posts: 656 Member
    Quilter_1 said:

    I had no bleeding after

    I had no bleeding after surgery.  I thought I would, so I bought maxi pax’s pre surgery, anyone need them? 

    Shelters could probably use them.

    eom 

  • Forherself
    Forherself Member Posts: 1,018 Member

     I don't know what stage it

     I don't know what stage it is but pathology report said it wa atypical complex hyperplastic and focal, well differentiated and called endometrioid adenocarcinoma. Gyno said it was caught early. She said for a bad thing it was the best possible situation. That's all I know right now.

    I am a knitter (professionally at times) and love crossword and suduko so I am stocking up to keep me occupied. MIght even try a jigsaw puzzle. 

    So great to have found this discussion group. So grateful for all your insights.

    Elainegint good biopsy results for you

    I didn't see this. Your biopsy is very good news.  If it endometrioid and no myometrial invasion, you wil likely have no treatment.  Or a few brachy radiation.   HOpefully it will be good news for you.  And that is the most common outcome for your biopsy.  

  • LisaPizza
    LisaPizza Member Posts: 358 Member
    Quilter_1 said:

    I had no bleeding after

    I had no bleeding after surgery.  I thought I would, so I bought maxi pax’s pre surgery, anyone need them? 

    Lol, same!

    Lol, same!