The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Many questions

Smilen2894
Smilen2894 CSN Member Posts: 1
edited August 2018 in Lung Cancer #1

I am a 42 yr old female, About 6 years ago my doctor sent me for an MRI on my lymph nodes in my neck because she had noticed they had been swollen for a long period of time. MRI showed several enlarged lymph nodes and nodules on my thyroid. Was told they were gonna keep an eye on them and do imaging yearly. I have went every year and they have stayed the same and some have slightly increased, both nodules and lymph nodes. Not really giving me much to be concerned about.

 

Recently, I have been fighting pneumonia,  been on steroids and antibiotics for about 6 weeks, with no help from them. Having a difficult time breathing,  very sore throat and a little cough but no usual cold symptoms like runny nose or anything.  Went to the ER where they did a CT scan and found a 12mm x 15mm groundglass mass and several nodules with the biggest being 5mm on my lungs. Ct also indicated that I had enlarged mediastinal lymph nodes. Told me to wait 3 months, if its goes away it's nothing, if it's still there after 3 months that it could be an aggresive process that needs to be treated. 

 Also, would like to add that blood work that came back abnormal:

MPV High 11.8

Creatine Serum Low 0.4

Low potassium 3.2

AST High 87

ALT High 76

And RBC in urine

 

 

I am going to my Dr. on Monday to speak with her about the results of the CT. Should I be okay with waiting 3 months or should I demand a PET scan and/or biopsy? Is the size of the mass something i should worry about? Just looking for opinions because I have had the enlarged lymph nodes for years. Maybe the two aren't even related, or, could they be?

 

Thanks so much for any advice

Comments

  • GoVols
    GoVols CSN Member Posts: 1
    edited September 2018 #2
    I would definately seek a 2nd

    I would definately seek a 2nd or 3rd opinion and would not wait.