Adenocarcinoma of cervix

Jamiek

I was just diagnosed yesterday. Of course I’m still in complete shock and terrified. I don’t see the gyn/onc until August 29th so I haven’t been staged or know my treatment plan. My doc says it appears to be contained within the cervical canal and is about the size of a walnut. CA 125 is negative.

I’m reaching out to find out more about Adenocarcinoma. I’ve read it’s a poorer prognosis than squamous cell. I know I shouldn’t be googling! Just wondering what to expect now and how others have coped.

NoTimeForCancer

Jamiek, I found this site

Jamiek, I found this site when looking for an active site when my friend was diagnosed.  Good group of people, so maybe you will find some more help here:

https://www.inspire.com/groups/national-cervical-cancer-coalition/

Jamiek

NoTimeForCancer said:

Jamiek, I found this site

Jamiek, I found this site when looking for an active site when my friend was diagnosed.  Good group of people, so maybe you will find some more help here:

https://www.inspire.com/groups/national-cervical-cancer-coalition/

Thank you for the post. I

Thank you for the post. I found the forum you mentioned yesterday. I’ve found it very helpful as well as cancerforums.net. This one has been a little quiet and I need all the help I can get right now.  

NoTimeForCancer

Yes, this particular thread

Yes, this particular thread can be quiet.  I am not famiiar with the one you mentioned so I will put a link to it as well for any who may find this and need answers.

https://www.cancerforums.net/

abrub

I was dx'd with a stage 4 Adenocarcinoma in 2007

It was found on my ovary; originated in my appendix.  Cancer treatments are improving day by day.  It's also not just the tumor type, but the type of tissue it's found in - a tumor that may be deadly in one organ may not be in another.  Be careful on Dr. Google; don't terrify yourself.  But do ensure that you get with a gyn onc specialist; if necessary going to one of the major cancer centers.

My current status:  cancer is growing slowly, but I'm living a perfectly normal life.  No treatments right now, just watch and wait.

Alice

Jamiek

abrub said:

I was dx'd with a stage 4 Adenocarcinoma in 2007

It was found on my ovary; originated in my appendix.  Cancer treatments are improving day by day.  It's also not just the tumor type, but the type of tissue it's found in - a tumor that may be deadly in one organ may not be in another.  Be careful on Dr. Google; don't terrify yourself.  But do ensure that you get with a gyn onc specialist; if necessary going to one of the major cancer centers.

My current status:  cancer is growing slowly, but I'm living a perfectly normal life.  No treatments right now, just watch and wait.

Alice

Alice, 

Alice, 

Your post gives me so much hope. I’m so glad to hear you are doing so well 11 years out from your diagnosis. I can’t stop the thoughts that creep into my head wondering how long I might have...1 years...2 years. I see a gyn/onc on the 29th in Dallas. I’ve read a lot about him and am really impressed with what I’ve read. I am also thinking about going to MD Anderson in Houston for a second opinion. It couldn’t hurt. Just the thought of waiting that long and not knowing what stage I’m at is really hard. I hope you continue doing so well. 

abrub

Jamiek said:

Alice, 

Alice, 

Your post gives me so much hope. I’m so glad to hear you are doing so well 11 years out from your diagnosis. I can’t stop the thoughts that creep into my head wondering how long I might have...1 years...2 years. I see a gyn/onc on the 29th in Dallas. I’ve read a lot about him and am really impressed with what I’ve read. I am also thinking about going to MD Anderson in Houston for a second opinion. It couldn’t hurt. Just the thought of waiting that long and not knowing what stage I’m at is really hard. I hope you continue doing so well. 

MD Anderson is one of the best in the world

I heard things with my original diagnosis - some other variants on tumor types that I "knew" were always quickly fatal (my dr mentioned some goblet cell).  But again, it depends on the organ affected.  We all have goblet cells (they produce mucin and are also part of our normal cells.)  I was convinced I'd be dead within months.  And the month before I got to meet with an oncololgist was the longest month of my life.

Your head is spinning.  I completely understand that feeling.  Let's get things in order, get plans in place.  And a point to bring up, before further surgeries, might be asking about whether or not vaginal reconstruction will be an issue/possibility.  (I had a plastic surgeon involved in my most recent surgery because I knew I was going to lose a portion of my vagina, and I hoped to be able to remain sexually active.  I am.)

Write down questions; record your sessions with the drs, and bring someone with you who can also listen.

PM me if you want direct contact.

Alice

Jamiek

abrub said:

MD Anderson is one of the best in the world

I heard things with my original diagnosis - some other variants on tumor types that I "knew" were always quickly fatal (my dr mentioned some goblet cell).  But again, it depends on the organ affected.  We all have goblet cells (they produce mucin and are also part of our normal cells.)  I was convinced I'd be dead within months.  And the month before I got to meet with an oncololgist was the longest month of my life.

Your head is spinning.  I completely understand that feeling.  Let's get things in order, get plans in place.  And a point to bring up, before further surgeries, might be asking about whether or not vaginal reconstruction will be an issue/possibility.  (I had a plastic surgeon involved in my most recent surgery because I knew I was going to lose a portion of my vagina, and I hoped to be able to remain sexually active.  I am.)

Write down questions; record your sessions with the drs, and bring someone with you who can also listen.

PM me if you want direct contact.

Alice

Great AdviceVaginal reconstruction

Great advice Alice. I have learned over the last couple of days I need a couple of notebooks. One to journal my journey, thoughts and experiences and one to write down useful information. Vaginal reconstruction had not even occurred to me. Thank you for that great advice. I will definitely pm you at times...you give me so much hope. Thank you. 

JennandJuice

Cervical Survivor

I’m a survivor of stage 4 cervical adenocarcinoma with ovarian metastasis and no lymphoma vascular invasion. It’s very rare. Happy to help be an ear or a hand.