The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Introduction and my kidney cancer story

2»

Comments

  • Manufred
    Manufred CSN Member Posts: 241 Member
    #22
    Hope for the Best

    Good luck with the treatment.  At this stage wishful thinking is not a bad idea.

     

    Like Care
  • EBFRCC
    EBFRCC CSN Member Posts: 23
    #23
    My first infusion went well.

    My first infusion went well. Now I just wait for the side effects to creep up. Yet another nerve racking stage of the process.

    Like Care
  • AnnissaP
    AnnissaP CSN Member Posts: 632 Member
    #24
    Wow! Glad you got things

    Wow! Glad you got things under way. I wish you all the best!!!

    Like Care
  • EBFRCC
    EBFRCC CSN Member Posts: 23
    #25
    Second infusion next week

    The first week after my first infusion was fine. The second brought tiredness and gastrointestinal issues. Cry

    This week has been more normal. But I am so itchy! No idea if its the meds or the MN state bird (mosquitos).

    Not sure if I should expect the same sort of cycle next go round or if things will get progressively worse. We’ll see.

     

    Like Care
  • Amy_Jo
    Amy_Jo CSN Member Posts: 70 Member
    #26
    EBFRCC said:

    Second infusion next week

    The first week after my first infusion was fine. The second brought tiredness and gastrointestinal issues. Cry

    This week has been more normal. But I am so itchy! No idea if its the meds or the MN state bird (mosquitos).

    Not sure if I should expect the same sort of cycle next go round or if things will get progressively worse. We’ll see.

     

    I'm undergoing the same

    I'm undergoing the same treatment. At fisrt I was really tired and very itchy. I just finished the agressive part of the treatment and now I will receive treatments once a month. For me personally the gastro symptoms and itchiness did go away I occasionally have rough patches on my skin however with moisturizing lotion it's no big deal. I wish there was something I could do to help you. I have 2 teens and 2 toddlers so the big kids are a big help. I also have a husband that is very helpful. I'm also wishing for my cancer to melt away. I will be praying for healing and strength so you can weather this storm and take care of your sweet babies. 

    Like Care
  • EBFRCC
    EBFRCC CSN Member Posts: 23
    edited July 2018 #27
    Amy_Jo said:

    I'm undergoing the same

    I'm undergoing the same treatment. At fisrt I was really tired and very itchy. I just finished the agressive part of the treatment and now I will receive treatments once a month. For me personally the gastro symptoms and itchiness did go away I occasionally have rough patches on my skin however with moisturizing lotion it's no big deal. I wish there was something I could do to help you. I have 2 teens and 2 toddlers so the big kids are a big help. I also have a husband that is very helpful. I'm also wishing for my cancer to melt away. I will be praying for healing and strength so you can weather this storm and take care of your sweet babies. 

    I read your post earlier. I’m

    I read your post earlier. I’m thinking of you and your four kids. Stay strong. Hug your kids.

    Like Care

Discussion Boards