Day 2 post-op

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Comments

  • Glidergal365
    Glidergal365 Member Posts: 93
    #22
    hardo718 said:

    Glad it's behind you

    Hoping your recovery goes well.  Coping with the diagnosis for me was like being hit by a truck.  That couldn't be, not me, why me and a myriad of other crazy thoughts I suppose.  Give yourself time to get over the shock.  It's a process.  Some of my thoughts after a little adjustment included, thank God that F***** is out of me and other not so nice thoughts about cancer.  I named the beast that grew within so I could refer to it in those moments.  (Bob the Blob)  

    Best wishes on your road to recovery,

    Donna~

     

    Ha!

    My boyfriend name my odd shaped kidney Fred so we called my tumor Wilma :)

  • steelr66
    steelr66 Member Posts: 23
    #23
    Glidergal365 said:

     For the most part my recovery has been going exceptionally well, however I noticed Friday a spot not healing in the bigger scar (I had a hand assist ) and went in to the clinic where one of the internal stitches (the knot) had poked through. He pulled it out and clipped it. Since then the whole thing has itched and now I have what feels like sunburn below the bellybutton (about a 5 inch area to the left of my large incision).I called the on call Dr and will see them tomorrow, he thinks it's a nerve reaction. Has anyone else experienced this? My incision doesn't look Infected, no fever etc.. its so annoying and when I walk anything that touches feels awful :(

    anything that touches...

    Right there with you. I'm sure the neighbors think i'm pregnant because i walk up and down the sidewalk holding my shirt pulled out in front of me Cool

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #24
    Support

    I was sick with flu and ended up in the emergency department. Few hours later I was diagnosed with RCC. I had a large mass in my left kidney. I just remember the ER physician saying it's contained to your kidney she had scan my chest as well it was all clear. I know her intention were of giving me hope. I was alone scared and devastated. I have four children 2,5,13,16. I'm 39 years old. Two weeks later I had my left kidney removed. My mass was stage III and my pathology was stage 4. It's been almost 5 weeks since I had surgery - my surgery was converted to full open I had to have 2 pints of blood. I'm still really sore I have one small section of my incision that opened up it's scab over now butt still painfull. 3 weeks after surgery I went in to let my surgeon check my incision I mentioned pain in my left shoulder and neck. He ordered a scan of my chest I have two blood clots in my lung. I'm now on xarelto. I feel exhausted and sad. My husband is growing impatient with me. He feels I should be doing more. I'm terrified. My pathology report said the margins were all clear. Anyone else struggling with this? My surgeon said it may take up to two months to feel human again. 

  • Angiebby75
    Angiebby75 Member Posts: 208 Member
    #25
    I have nerve issue since my

    I have nerve issue since my surgery 5 months ago. Its has been getting a little better. Wishing you a speedy recover. 

  • hardo718
    hardo718 Member Posts: 853 Member
    #26
    Willllma!!!

    Love it, that's a good one!  haha

    That nerve pain isn't unusual, think of all those nerves they cut on the way in.  They're pissed off and trying to heal and reconnect.  In time it does go away.

    Patience,

    Donna~

  • Gtngbtr58 @aol.com
    Gtngbtr58 @aol.com Member Posts: 206 Member
    #27
    Amy Jo

    Sorry to hear about your situation.  Please be patient with yourself and accept whatever help you can get. Maybe you should explain to your husband that the next few weeks are going to be hard and you need all the support and help you can get from him.

     Take it slow and easy-you'll feel a little better each day.  Good luck!

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    #28
    Amy_Jo said:

    Support

    I was sick with flu and ended up in the emergency department. Few hours later I was diagnosed with RCC. I had a large mass in my left kidney. I just remember the ER physician saying it's contained to your kidney she had scan my chest as well it was all clear. I know her intention were of giving me hope. I was alone scared and devastated. I have four children 2,5,13,16. I'm 39 years old. Two weeks later I had my left kidney removed. My mass was stage III and my pathology was stage 4. It's been almost 5 weeks since I had surgery - my surgery was converted to full open I had to have 2 pints of blood. I'm still really sore I have one small section of my incision that opened up it's scab over now butt still painfull. 3 weeks after surgery I went in to let my surgeon check my incision I mentioned pain in my left shoulder and neck. He ordered a scan of my chest I have two blood clots in my lung. I'm now on xarelto. I feel exhausted and sad. My husband is growing impatient with me. He feels I should be doing more. I'm terrified. My pathology report said the margins were all clear. Anyone else struggling with this? My surgeon said it may take up to two months to feel human again. 

    I'm sorry to hear you're

    AmyJo: I'm sorry to hear you're having such a hard time of it. Your husband needs some educating on just what you have gone through. Maybe through this forum or your doctor. I am a month post-surgery, my cancer had spread and I had a 10 hour surgery and all my blood replaced. Of course I'm much older, at 63, but this is not easy at any age. I hope you can get through to him. The last thing you need is his being impatient and forcing at you to do more. My Doctors offered counseling if we needed it. Sometimes I think we do and other times, think we're ok. So don't hesitate on that one, too. It's not easy! First and foremost, you have to have the proper after care and NOT do too much too soon!!

    I am very worried about you! Please keep in touch.

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #29
    JoeyZ said:

    I'm sorry to hear you're

    AmyJo: I'm sorry to hear you're having such a hard time of it. Your husband needs some educating on just what you have gone through. Maybe through this forum or your doctor. I am a month post-surgery, my cancer had spread and I had a 10 hour surgery and all my blood replaced. Of course I'm much older, at 63, but this is not easy at any age. I hope you can get through to him. The last thing you need is his being impatient and forcing at you to do more. My Doctors offered counseling if we needed it. Sometimes I think we do and other times, think we're ok. So don't hesitate on that one, too. It's not easy! First and foremost, you have to have the proper after care and NOT do too much too soon!!

    I am very worried about you! Please keep in touch.

    JoeyZ

    Thank you for your response. I'm trying not to push myself to hard. I explained to my husband that I am trying butt my body needs time. We have a two year old daughter so it makes things difficult because my surgeon said not to lift over 10 pounds. My husband is use to me doing everything. I was so sick prior to my surgery that I was in bed for 3 weeks prior. I'm about to hit the 5 weeks since my surgery. I continue to have soreness I'm moving around ok however bending just to put shoes on can be a chore. I had a 2 week follow up after surgery and then my surgeon said see you in 6 months for a scan. I feel like I am walking blindly through this. I have worked in healthcare for 13 years - I'm taking good care of my insicion and emotionally I'm ok. I'm sure being on blood thinner isn't helping with my energy level either. Wow your surgery sounds like it was brutal. Was your surgeon able to remove your cancer? My surgery was March 8 my surgeon said my cancer was nasty and it may take my body 2 months to reajust. 

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #30
    Gtngbtr58 @aol.com said:

    Amy Jo

    Sorry to hear about your situation.  Please be patient with yourself and accept whatever help you can get. Maybe you should explain to your husband that the next few weeks are going to be hard and you need all the support and help you can get from him.

     Take it slow and easy-you'll feel a little better each day.  Good luck!

    Thank You

    I'm trying to be patient with my recovery however with a two year old and bills building up it's crucial that I get back to work sooner than later. I hope to return to work in two weeks. Its difficult because my body just wants to sleep. I know my husband means well. He has been holding down the fort over 8 weeks now I'm sure he is just frustrated. He is working grocery shopping cleaning house doing laundry and tending to our toddler most of the time. 

  • Glidergal365
    Glidergal365 Member Posts: 93
    #31
    steelr66 said:

    anything that touches...

    Right there with you. I'm sure the neighbors think i'm pregnant because i walk up and down the sidewalk holding my shirt pulled out in front of me Cool

    bahahhah

    That image made me giggle. Thanks. I am glad to know it's "normal", well, my new normal I guess. Any day now I'd like it to go away :( 

  • Glidergal365
    Glidergal365 Member Posts: 93
    #32
    Amy_Jo said:

    JoeyZ

    Thank you for your response. I'm trying not to push myself to hard. I explained to my husband that I am trying butt my body needs time. We have a two year old daughter so it makes things difficult because my surgeon said not to lift over 10 pounds. My husband is use to me doing everything. I was so sick prior to my surgery that I was in bed for 3 weeks prior. I'm about to hit the 5 weeks since my surgery. I continue to have soreness I'm moving around ok however bending just to put shoes on can be a chore. I had a 2 week follow up after surgery and then my surgeon said see you in 6 months for a scan. I feel like I am walking blindly through this. I have worked in healthcare for 13 years - I'm taking good care of my insicion and emotionally I'm ok. I'm sure being on blood thinner isn't helping with my energy level either. Wow your surgery sounds like it was brutal. Was your surgeon able to remove your cancer? My surgery was March 8 my surgeon said my cancer was nasty and it may take my body 2 months to reajust. 

    Hi Amy_Jo

    I'm so sorry to hear about your struggles. I've been so lucky to have a supportive boyfriend. We don't live together but he has been to see me daily, help me grocery shop, run me to Dr appointments etc. I'm thankful my kiddos are older (10, 15 and 18) and are able to help me. My ten-year-old has felt really special to help mom while I'm unable to do anything. I work in healthcare too, have for years. I'm a Community Health Worker. This experience will change the way I work with people even more. If you have facebook there are a few really great support groups on there as well for Kidney Cancer. It has helped me to read people's stories and tips. Feel free to reach out if you just want to talk! 

    Jenn

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    #33
    Amy_Jo said:

    JoeyZ

    Thank you for your response. I'm trying not to push myself to hard. I explained to my husband that I am trying butt my body needs time. We have a two year old daughter so it makes things difficult because my surgeon said not to lift over 10 pounds. My husband is use to me doing everything. I was so sick prior to my surgery that I was in bed for 3 weeks prior. I'm about to hit the 5 weeks since my surgery. I continue to have soreness I'm moving around ok however bending just to put shoes on can be a chore. I had a 2 week follow up after surgery and then my surgeon said see you in 6 months for a scan. I feel like I am walking blindly through this. I have worked in healthcare for 13 years - I'm taking good care of my insicion and emotionally I'm ok. I'm sure being on blood thinner isn't helping with my energy level either. Wow your surgery sounds like it was brutal. Was your surgeon able to remove your cancer? My surgery was March 8 my surgeon said my cancer was nasty and it may take my body 2 months to reajust. 

    We had surgery the same day,

    We had surgery the same day, March 8th! I do hope you're feeling better. I do know it's harder for "normal" people and I hope you can get through to him. Take it easy.

    We don't know yet if they got all the cancer out. We hope so, but I will find out the results of my post-op CT Scan on Tuesday the 17th. Two days from now. I'm on week two of Cabo so if any is left in there, I hope it's killing it off!!

    I worked very near to the healthcare field for 10 years. It was a great experience.

    Take it easy.

  • Glidergal365
    Glidergal365 Member Posts: 93
    #34
    Amy_Jo said:

    Thank You

    I'm trying to be patient with my recovery however with a two year old and bills building up it's crucial that I get back to work sooner than later. I hope to return to work in two weeks. Its difficult because my body just wants to sleep. I know my husband means well. He has been holding down the fort over 8 weeks now I'm sure he is just frustrated. He is working grocery shopping cleaning house doing laundry and tending to our toddler most of the time. 

    How are you doing Amy Jo?

    Hi Amy Jo, just wanted to check in and see how you're feeling. Hope it's getting better as time passes. 

     

    Jenn

  • Steph85
    Steph85 Member Posts: 166 Member
    #35
    Amy_Jo said:

    Support

    I was sick with flu and ended up in the emergency department. Few hours later I was diagnosed with RCC. I had a large mass in my left kidney. I just remember the ER physician saying it's contained to your kidney she had scan my chest as well it was all clear. I know her intention were of giving me hope. I was alone scared and devastated. I have four children 2,5,13,16. I'm 39 years old. Two weeks later I had my left kidney removed. My mass was stage III and my pathology was stage 4. It's been almost 5 weeks since I had surgery - my surgery was converted to full open I had to have 2 pints of blood. I'm still really sore I have one small section of my incision that opened up it's scab over now butt still painfull. 3 weeks after surgery I went in to let my surgeon check my incision I mentioned pain in my left shoulder and neck. He ordered a scan of my chest I have two blood clots in my lung. I'm now on xarelto. I feel exhausted and sad. My husband is growing impatient with me. He feels I should be doing more. I'm terrified. My pathology report said the margins were all clear. Anyone else struggling with this? My surgeon said it may take up to two months to feel human again. 

    I can relate.

    I'm 32 with a 2 yr old and 5 yr old. I thought I had gallstones just to find out I had RCC. I was extremely lucky that my mother in law came to help. My husband did a little, but I'm the stay at home mom. My 2 yr old just wanted to jump and crawl on me and it was sooo hard. I to had a open nephrectomy. I'm 3 months post op today and feel a whole lot better. By 2 months I was feeling more "human" again. Still fatigued though. I'm now able to excercise and doing some abdomimal exercises.  I'm always a little sore around my incision site. Anyway, I can absolutely relate. If you need someone to talk to or vent to you can message me. Your husband should understand what you went through was major surgery and you know... Had cancer!! Don't push yourself too hard because it can delay your recovery. You need to take care of yourself first. The rest can waite. Hope your doing better, take care!

    Stephanie

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #36
    Glidergal365 said:

    How are you doing Amy Jo?

    Hi Amy Jo, just wanted to check in and see how you're feeling. Hope it's getting better as time passes. 

     

    Jenn

    Thank you

    Unfortunately I'm not doing to well. I had back pain for a week after seeing my family doctor and no releif I went to the emergency department. My cancer has spread to my spine and liver. I'm being transferred to a larger facility to meet with oncologist in the morning. 

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #37
    Steph85 said:

    I can relate.

    I'm 32 with a 2 yr old and 5 yr old. I thought I had gallstones just to find out I had RCC. I was extremely lucky that my mother in law came to help. My husband did a little, but I'm the stay at home mom. My 2 yr old just wanted to jump and crawl on me and it was sooo hard. I to had a open nephrectomy. I'm 3 months post op today and feel a whole lot better. By 2 months I was feeling more "human" again. Still fatigued though. I'm now able to excercise and doing some abdomimal exercises.  I'm always a little sore around my incision site. Anyway, I can absolutely relate. If you need someone to talk to or vent to you can message me. Your husband should understand what you went through was major surgery and you know... Had cancer!! Don't push yourself too hard because it can delay your recovery. You need to take care of yourself first. The rest can waite. Hope your doing better, take care!

    Stephanie

    Thank you for your support

    My cancer has spread to my liver and spine I'm waiting to be transferred to a larger facility to meet with oncologist. 

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #38
    JoeyZ said:

    We had surgery the same day,

    We had surgery the same day, March 8th! I do hope you're feeling better. I do know it's harder for "normal" people and I hope you can get through to him. Take it easy.

    We don't know yet if they got all the cancer out. We hope so, but I will find out the results of my post-op CT Scan on Tuesday the 17th. Two days from now. I'm on week two of Cabo so if any is left in there, I hope it's killing it off!!

    I worked very near to the healthcare field for 10 years. It was a great experience.

    Take it easy.

    JoeyZ

    I hope you are doing well. I just reported to the emergency department due to severe back pain to find out my cancer has spread to my liver and spine. ImI being transferred to a larger facility to meet with oncologist to see what the plan is. I'm so frustrated because I was feeling so much better and I thought I was getting back to my life. Hoping this is a bump in the road and not the end of it. 

  • Glidergal365
    Glidergal365 Member Posts: 93
    #39
    Amy_Jo said:

    Thank you

    Unfortunately I'm not doing to well. I had back pain for a week after seeing my family doctor and no releif I went to the emergency department. My cancer has spread to my spine and liver. I'm being transferred to a larger facility to meet with oncologist in the morning. 

    I'm so sorry

    I'm so sorry to hear about what's happening. Sending good thoughts your way. Let me know if there's any way I can support you. We are here to listen! 

     

  • Retcenturion
    Retcenturion Member Posts: 240 Member
    #40
    Positive thoughts Amy-Jo

    Hoping you get better news at the larger facility. You might consider opening a Post for your treatment for us to follow. Sending positive thoughts for you and your famiily

  • stub1969
    stub1969 Member Posts: 985 Member
    #41
    Amy_Jo said:

    Thank you

    Unfortunately I'm not doing to well. I had back pain for a week after seeing my family doctor and no releif I went to the emergency department. My cancer has spread to my spine and liver. I'm being transferred to a larger facility to meet with oncologist in the morning. 

    Support

    Sorry to hear about this turn-of-events, Amy.  I'm hopeful that your new oncologist will develop a plan so you find relief.  Although we are here to support you, I'd also encourage you to reach out to the smartpatients website.  Many of the members there are stage 4.  You'll gain a lot of knowledge and support there.

    Take care,

    Stub

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