The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Radionecrossis of C1

Viilik70
Viilik70 CSN Member Posts: 73

I got the results back from my CT and I have radionecrossis of the C1 vertebrae. My ENT says there is a break in the front, away from the spinal cord and there is probably some infection around it. He seems to be a little bit of a loss of what to do. I am going to see a neurologist, but I think I'm going to my ENT that moved to Boston because he has seen more cases like me. For now just managing with pain meds. Has anyone else had this? If so what did they do for you?? Thanks in advance for any help and God bless!