They say I'm running out of time

apntx2ap

Hello everyone. I've been fighting breast cancer for more than 7 years. I'm in clinical trials now and I was told to start thinking of my life in months rather than years. I always knew this stage would come, but I'm scared and not ready to leave this life. My children are grown now and my husband and will celebrate our 27th wedding anniversary in June. I've had my share of grief like anyone else, I lost my mom and 4 brothers in the last 14 years. The pain is still strong, but I have my dad who's about to be 87, one brother with special needs and 2 sisters who don't reallly help me care for them. Still though,  my husband and sons pitch in as I've gotten weaker. The thing is, I can still go out and drive myself around and take care of any business needs and I honestly just don't feel that sick. Like dying sick. Then again, I've never been here before so maybe I really am feeling what it's like. Who knows, but I love my life and I don't want it to end at 48 years old. Can anyone commisserate or offer any advice? Or just tell me what you're going through and I'll listen. Thank You, Alma 

Beepositive

Apntx2ap reply

Hello Apntx2ap... KEEP LIVING ...KEEP DRIVING AND LIVING YOUR LIFE! FOCUS ON NOW.

PRAYER GOING UP FOR YOU AND YOUR FAMILY!  HUGS!!

BEEPOSITIVE

Kats2

Seek out more opinions

Hi Apntx2ap,

I don’t know what state you live in or what facilities you have there, but if you haven’t gone to any other Oncologists anywhere else, my suggestion would be to go. Find a reputable place where there are specialists in your type of breast cancer. If you need to travel to get there, do so while you’re still up to it. What harm would that do? It might help a lot in getting more input and ideas and maybe other types of treatments that would be available for you.

I wouldn’t just listen to one person’s opinion on my condition. More heads are better than one. 

The fact that you’re active, driving, etc., says a lot in your favor. Don’t get discouraged. No one knows when another’s time on this earth is over. Only God determines that.

Just remember that there are new medicines and discoveries coming out all the time. 

Through reading I’ve come upon authors who study theories on how the mind plays an important role in how our bodies react. Imagining that you’re well is very important. It’s called The Law of Assumption. Assume that you’re healthy, really believe it, and your thoughts will harden into fact. I do this type of imagination activity quite often. I recommend it. People have gotten good results imagining that they’re well. The belief must be genuine though, and it should be done as many times as possible during the day or week.

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Faith is what we need, as well as good medical care.

So, hang in there. Get more opinions, and live each day with positive thoughts that there will be many more days ahead of you to enjoy.

Hope this has helped. Courage and many blessings go out to you.  Kats2

 

 

Beepositive

you are sooo Right Kats2

Nobody knows but the man up above...and 2nd opinions are always good.

continued prayer to you Alma!!!

Beepositive!

Apaugh

Grandma use to say....

My grandmother use to say, "Don't stop moving!"   Sounds like that is what your doing!  Go until you can't. 

Prayers and hugs,

Annie

HapB

Apntx

I agree with Kats, you should go to at least one major cancer center and get another opinion. 

In the meantime, prayers, faith, and living each day to the fullest will get you through this. 

Keep the faith! 

caregiver wife

Running out of time...

... They told my mom she had less than 3 months after all treatment had failed.  She died over 5 years later from a heart attack, in her sleep.  

All the advice above, get a second opinion, do what you can to be prepared for your family, then LIVE your life!  You are not "dieing" until you are dead.  No one person is an average.

God Bless you!  

Crystal

Elle58

Apntx

You know what they say, 'It ain't over 'til the fat lady sings.'  The good news for you is that although I AM fat, I have NEVER been able to sing.  I don't see that changing anytime soon, so you just need to keep on believing that 'it ain't over' yet for you either, especially if you don't feel 'dying sick.'  Get those other opinions and keep on keepin' on!  Love, hugs, and prayers.

Elle

ruthannsl

I am a 3x survivor. I am

I am a 3x survivor. I am sorry you are going through this. If you have been diagnosed stage 4 like I was, be sure they have been accurate. The PET/CT scans they are giving, oftentimes proper protocol is not followed and this can skew the test results. It did for me. I have a strong faith in God and I know he stopped my aggressive TNBC that has spread to my lymph and other areas. but you need an advocate. Diet is important. Avoiding as much stress as possible - relying on our God and Savior is very important. Even if I go tomorrow, I am not afraid as I know where I am going. My mom and uncle died from the treatment of this disease. When I was first diagnosed 22 years ago, I chose no treatment and in 2016 I also chose no treatment. Don't let the surgeon do core needle biopsy on suspicious lumps. Make sure you have an excisional biopsy when possible, no matter what kind of cancer. Do your research and have an advocate in any dr. office. They don't know everything and sometimes they make mistakes, as they did in my case. I will pray for you. It's a tough battle.Some treatments are NOT in the best interest of the patient but are very, very costly.