The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Advice needed for pain during recovery

2»

Comments

  • dwp155
    dwp155 CSN Member Posts: 30
    #22
    Doing Well

    Christine, it sounds like your husband and I are reacting about the same.  Just when you think you are better, you are not.  I am really jusy trying to take it as it goes and somedays it works!

    Like Care
  • Drivingdaisy
    Drivingdaisy CSN Member Posts: 263
    #23
    Very Similiar reactions

    I am a 2 yr Surviver but have many, many side effects.  During Chemo/ Rads I had allot of sensitivity, didn’t like being touched.  That has calmed down but being in Fl. I am always cold.  Before cancer dealt with Menopause so always. hot, what a difference.  People here stared to stare at me since I am always layered to stay warm.  Sleep with a heating pad.  I did lose 40 lbs during treatment & had to eat through a feeding tube so no meat on my body for insulation.  2 years & only put on 10 lbs but always hungry, 3 meals a day, taking forever.  I have a ruined thyroid & No saliva.  Miserable.  If I get a little saliva it’s Chemo saliva ......thick & ropey.  I also suffer from sinus issues & this yr it’s been horrible here in Fl due to the up & down weather....comes in waves.  Mix that mucus with saliva mucus .....yuck.   Always dry mouth, drink too much fluids & developed loss of sodium issues.  Caused a stroke this past Oct on my 60th Birthday. During we’ll just seem tired all the time.  So you see We all have our new normal.  At 3 months post recovering, I was deamed Cancer Free & eating steak. Mostly bloody prime rib, extra juice.  I was doing better than than I am now.  Every day is new, so as they say, One day at a Time.  Best way to handle it.

    Like Care

Discussion Boards