WBUR: As More Survive Cancer, These Doctors Try To Ease The Aftermath Of Treatment

Mikenh

[i]Survival is obviously the main goal for cancer patients. But the fact that so many are surviving years or even decades means providers need to think more about their quality of life after treatment, Partridge says.

She's part of a growing medical movement aimed at safely dialing back therapies where possible, and providing more mental and physical support for cancer survivors. According to its definition, cancer survivorship begins at the time of diagnosis, so even treatment is considered a survivorship issue, as are the long-term psychological and physical effects of the tumor and treatments.[/i]

http://www.wbur.org/commonhealth/2018/01/12/cancer-survivorship

BRHMichigan

Nice article

Thanks for sharing, Mike!

Woodytele

Thanks mike

good stuff, good info

ron50

In twenty years of survival

    No agency or medical body has ever contacted me. During chemo therapy I asked about long term side effectsand I was asured they would be taken care of as they arose. It has never happened and yes I have contacted several govt bodies about my long term problems . They don't bother responding. NB that is in Australia. Ron.

Mikenh

ron50 said:

In twenty years of survival

    No agency or medical body has ever contacted me. During chemo therapy I asked about long term side effectsand I was asured they would be taken care of as they arose. It has never happened and yes I have contacted several govt bodies about my long term problems . They don't bother responding. NB that is in Australia. Ron.

I think that long-term care

I think that long-term care is a hard problem because of payments. Hospitals in the US are generally struggling and they require some kind of insurance payments to provide the niceties which includes follow-up. But it feels like everything is payment for services. My Visiting Nurse services were covered by my private insurance and it was more than I really needed but it ended when I went back to work. I do not know how public services work overall but I suspect that the quality of services varies widely. We managed to get various services for my mother, Medicare and local and state but we have to keep up with things as things fall through the cracks. Overall care without family support and/or community support is very hard.

tanstaafl

longest term success

"Dialing back therapies" in real life likely means replacing many chemo elements with milder drugs and specific, highly potent, supplement doses, that add up to better kill and antimetastasis properties. 

My wife had/has absolutely fatal markers and real estate but she has not needed oxi-, iri- Avastin  or Erbitux, just the lowest cost oral  5FU chemo from Asia.  Heavily modulated by mild drugs and particular supplement choices.  Nor do we need to buy the steroids, antemetics, painkillers, etc most  chemo patients do.

"Better, longer living through superior chemistry"

Pamcakes

Great info...thank you for

Great info...thank you for sharing

Mickeyclaude

Support

i am glad this forum is here because I feel traumatized now that the initial flurry of treatments is over.it is like anxiety and insomnia ...