Crazy ride.

Highdesert
Highdesert CSN Member Posts: 1
in Kidney Cancer #1

I'm a 55 yo male. January 2016 underwent a CT scan, they found a mass had completely engulfed my left kidney. Further scans revealed a large mass laying against my trachea and 2 other directly below my lungs. Had my left kidney removed along with lymph nodes nearby. Went to MD Anderson for treatment, they recommended a clinical trial of Pazopanib. November MRI revealed 4 cancer lesions in my brain. Underwent Gamma knife.Next scan showed mets inside my lungs. 3 treatments of Opdivo and had to stop because it had started attacking my organs. Tried Cabometyx, that didn't work. I finally decided no more oncologists. No more treatments. In April 2017 started feeling better, scans showed decrease in size of tumors, mets inside my lungs didn't show on the scan. I went back to work, still working, haven't had a scan since late spring which showed more improvement. That's a crazy ride.

 

Comments

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    edited December 2017 #2
    Wow

    mindblowing crazy

    dont know how you cope with all that

    you are one amazing guy

    pray it keeps working for you

    Annie

  • AnnissaP
    AnnissaP CSN Member Posts: 632 Member
    #3
    Wow! Crazy ride is right. I

    Wow! Crazy ride is right. I wish you nothin but the best!!!!!

  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #4
    Figure out

    what you did. I'll buy some.

    I'll bet your immune system kicked into gear. If I were you, I would return to opdivo at least for awhile, should you ever back slide.

  • Angiebby75
    Angiebby75 CSN Member Posts: 208 Member
    #5
    Wow that is crazy and awesome

    Wow that is crazy and awesome. Glad your at least feeling better. 

  • marosa
    marosa CSN Member Posts: 334 Member
    #6
    hello Highdesert

    That is one crazy ride and may it continue to be so for you in the positive way you describe in your last results!  You are an example of why it is almost imposible to make individual and even general predictions about almost anything in this disease.  May you be well

  • tango xray
    tango xray CSN Member Posts: 26
    #7
    Awesome News!

    I had my open partial at MD Anderson in November and was given the opportunity to participate in a trial study but declined.  I too have returned to work and just living a more 'intentional' life and feeling fantabulous!  I am hoping that my scans can be a part of the 'crazy ride' club!

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