Lvsi

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New to the site. I was diagnosed with UPSC early Oct and had a full hysterectomy late Nov. They removed 11 nodes uterus tubes ovaries cervix and omentum. I was staged 1a which was great but they also said I had extensive LVSI (Lympho vascular space invasion) I will be doing chemo and radiation in the new year. Was just wondering if anyone else has LVSI with their diagnosis and how it has affected their treatment etc.

 

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  • ckdgedmom
    ckdgedmom Member Posts: 166 Member
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    No LVSI

    I have stage 4b UPSC with hysterectomy (uterus, tubes, ovaries, cervix, some vagina). None in omentum but 3 of 5 lymph glands had it (plus 2 that had to remain) and 2 more in neck...no one has mentioned LVSI to me but I had 6 rounds taxol/carboplatin and 25 rounds external beam radiation and 3 brachy treatments and then 30 rounds external beam to neck...

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
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    Thanks for the information

    Thanks for the information Ckdgedmom. I hope it all works well for you. 

     

  • ConnieSW
    ConnieSW Member Posts: 1,681 Member
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    LVSI

    I was diagnosed stage 1a UPSC with LVSI in March 2012 and treated with surgery, chemo and brachytherapy. I have been NED since.  Good luck to you. 

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
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    LVSI

    Hi ConnieSW. Thank you for your reply. That is good news! I hope my journey will be as positive. The idea that the cancer is in the vessels scares me. May I ask was yours graded as excessive? Mine went well into the myometrium. My tumour went into the myometrium also but only 2 ml.

  • MoeKay
    MoeKay Member Posts: 480 Member
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    Extensive LVSI

    I was diagnosed with stage 1c grade 2 endometrioid adenocarcinoma of the uterus in 1999 and had extensive LVSI.  I had internal and external radiation after surgery, but I would have needed the radiation even without the LVSI, since my tumor had invaded approximately 80% of the thickness of the myometrium, my tumor arose in the lower uterine segment, and it was a fairly large tumor. 

    Wishing you all the best as you complete your treatment.

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
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    Thank you for responding

    Thank you for responding MoeKay. Have you been cancer free since? This sounds promising to me. There is such scary data on the internet about this. This is such a wonderful forum to be able to talk to people on.

  • MoeKay
    MoeKay Member Posts: 480 Member
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    No Evidence of Disease

    Hi Wannabeatit, I have a friend who was diagnosed with stage 3 colon cancer around the same time as my diagnosis.  We shared our cancer journeys together.  Neither of us has ever been comfortable using the term "cancer free."  I know it's a term that's used a lot, especially in the media.  When asked, my friend and I will usually say something to the effect that we have been "without evidence of disease since completing treatment."  We have talked about the fact that since nobody really knows what's going on in our bodies at any given time, it's virtually impossible to accurately conclude that we are totally "cancer free." 

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
    edited December 2017 #9
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    Yes you are absolutely right.

    Yes you are absolutely right. I couldn’t Remember the term NED so I put that in instead. Still learning all the acronyms. I don’t think I could ever feel cancer free either.

  • derMaus
    derMaus Member Posts: 558 Member
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    Not Uncommon

    Lymphovascular space invasion isn't uncommon, especially with more advanced cancers. I was diagnosed with grade 3, stage III and my path report noted extensive lymphovascular space invasion. It's just one of the things - along with tumor grade, myometrial invasion, etc - that they use when assigning a statistical probability for prognosis. It's not good but it's not something which, unto itself, will determine your treatment outcome.

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
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    Thank you derMaus for your

    Thank you derMaus for your information. It was a topic that I haven’t seen anyone talk about. All of this is a little confusing and scary when I thought I was healthy and then......