Phyllodes Frustration/Advice

AnotherMallard

Okay Ladies I am looking for advice....again. Today I visted with my Oncologist/radiologist yet again. It feels at times that none of these doctors on the same page. I had a huge Phyllodes Tumor removed the end of July. Not all of the tumor could be removed because some of it was/is attached to my skin and another side would have comprimised my breast implants. So, my thoughts are that it is not whether or not this tumor will grow back (because it isn't completely gone) but how long will it take to grow back. Pathology reports have said that my tumour is Borderline.

So, after meeting with a team, their suggestion was to watch it closely. They were under the understanding that all margins were clear. I had another oncologist and the surgeon tell me that they couldn't get it all.

 Anyway the teams decision today, was to leave it and watch it closely. I am not comfortable with this. I have read sooo much about these things growing back and being that some of mine is still there, yhe fact that it was huge and also that the cellular overgrowth is high, that I should do something about it.

Radiation is poison and it will probably ruin my implant. Would be great if it wouldn't but no guarantee. In order to get clear margins? A mastectomy is the only option or guaranteed option.

I am 49 years old amd suffer from Major Depression and Anxiety. I am not sure sitting back and watching and waiting is a great option for me. I am already frustrated about going back and forth to Dr's and Surgeon's. I need help. I need your advice. Any of you that care to throw in your thoughts? Please do. I can't make this decision alone.

Apaugh

No easy answer

There is no easy answer to this.  You are the only one to make the choice.  Think about the data your docs gave you and make the choice.  I wish you did not have to make the choices at all.

Keep us informed.  We are here.

Hugs,

Annie