What Am I in For???

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Comments

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited October 2017 #22
    Angie1496 said:

    I also have the need to know

    I also have the need to know everything that is going to happen before it does.  I have had about 9 surgeries in the past but this was by far the most important and scary IMO.  But educating myself eases my mind and by the day surgery came I was almost serene.  I was ready and knew almost step by step what was going to happen.  I was however upset they made me put on ugly socks before surgery.  I had had my toes done the day before because I thought "if I have to be naked in front of God and everyone at least my toes can look good!" :)  I even watched a few video's of the surgery a few days before had.  Those really helped ease my mind.  Although some people thought it was weird for me to do that.  I also opted for a TAP block for the surgery. its like a nerve block.  They said my pain after waking up was much less than it would have been without the block. So ask about that if you talk to the anesthesiologist ahead of time.  Mine came to see me as well as the Doc prior too.  My Doctor looked at me funny when I said please take pics of it for me.  

    That is funny about the socks

    That is funny about the socks lol!!! I am glad it all went well for you!

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited October 2017 #23

    My partial was three weeks ago today

    Dont do what I did and SPEND three weeks reading up on every single possible complication known to man and scared myself witless

    in uk so sounds like some things are slightly different

    Attended and passed all the pre assessment tests

    Didnt have to have any  internal cleaning processes  prior.  Just turned up on day with nil by month from midnight 

    Didn’t get a pre med.  was very very  ready for the surgery but I admit I did panic a little when they were giving me the anaesthetic. my eldest son was outside and I was panicking in case he never saw me again

     

    Surgery went very smooth and no complications  

    i did struggle with pain the first three days   I am overweight and I think that made it harder for movement etc... You sure don’t have that problem  However when I asked pain relief was always quick to come  There WILL be pain but it is easily managed and after 48 hours the worst is over

    I spent six days  in hospital due to a slight chest infection but I am so glad I did because I only have my sons at home and so when I did get home I was up and walking everything was back on track

    i spent days worrying about the catheter and drain but both were removed with no pain at all

    Also spent days worrying about if I had to have a BM would I make it to the toilet in time and in great pain

    in the end it was five days and everything was fine

     

    by far the worst thing is the sheer exhaustion  The first week you will be fit for nothing and then it gets slowly better

     

    My surgeon told me six weeks recovery so I hope to be back at work part time around the five week mark

    just don’t lift anything and drink as much as you can.   walk as much as you can and rest as much as you can

    Honestly afterwards you will wonder why you got so worked up

    I will be praying and thinking of you

     

    Annie

    Once again, thanks to all for

    Once again, thanks to all for sharing!!! You are all very brave!!

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    There's a reason for no make-up or nail polish

    For surgery, they need to see the coloration on the nail bed to ensure full circulation to the feet and hands.

    Save the mani-pedi for a spa day when you can walk in on you own power.

    donna_lee

  • Angie1496
    Angie1496 Member Posts: 154
    AnnissaP said:

    That is funny about the socks

    That is funny about the socks lol!!! I am glad it all went well for you!

    I was pretty upset about them

    I was pretty upset about them.  They came off right after the air socks came off the next morning after surgery and I used my own.  THey said my feet would get cold.  I was like "dude I am naked!"

  • Angie1496
    Angie1496 Member Posts: 154
    donna_lee said:

    There's a reason for no make-up or nail polish

    For surgery, they need to see the coloration on the nail bed to ensure full circulation to the feet and hands.

    Save the mani-pedi for a spa day when you can walk in on you own power.

    donna_lee

    They told me just my fingers

    They told me just my fingers needed to be bare.  I was surprised!  I had on the air socks for blood clots for 24 hours though.

  • Bay Area Guy
    Bay Area Guy Member Posts: 620 Member
    edited October 2017 #27
    I had a robotic partial in

    I had a robotic partial in June, 2016.  The procedure took about three hours, including the time for the fire alarm that I'm told went off.  The procedure started around 3PM and I was in a regular room at about 8PM, with 2 hours in recovery.  The first sound I recall was my niece (who stayed with my wife) screaming in my ear and me telling her to shut up.  LOL.  The second thing I remember was the nurse getting me to stand up and me meekly complying.  (Yes, they do get you up almost immediately.)

    I recall having four tiny incisions, plus a fifth for the drain.  I had little to no pain and actually, other than being thirsty all night (and I was able to drink water immediately), I slept very well.  I ate the next morning and things started to happen very rapidly after that.

    The surgical team (minus the surgeon) came to tell me everything went very well and that they got it all.  They told me that I could go home as soon as I could handle the pain (which I told them I had none of) and pee.  And they told me the surgeon would be in to visit me around lunch time.  I asked if I could walk and they said yes.

    Not long after that, the nurse came in to remove the catheter.  It's funny, I've had a couple of other surgeries in my life (two big abdominal surgeries) and the only thing I was dreading for this one was the catheter.  I am convinced that the urinary catheter for a male wa developed by the Marquis deSade.  Anyway, that came out and I proposed to the nurse that took it out I was so happy.

    After that came walking and walking and walking.  About 45 minutes into the walk, the floodgates opened and I peed.  I durifully reported that to my fiance nurse and we were both very happy about that.  So I walked some more.

    I had a little lunch and at that time the surgeon came in and said everything looked very, very good.  His guess was chromophobe RCC (a guess that was verified about three days later) and he explained what kind of cancer that was and that I was quite fortunate because it rarely returns, rarely spreads and was one that grew vey slowly.  He also described folow-up (scans and chest x-rays every six months for a year).  He said I was free to go once the nurse practitioner took out the drain, which she did about ten minutes later.  That feeling was unusual, but there, again, wa no pain at all.  She explained what was needed in terms of dressing the wound and off she went.

    My fiance nurse took out the IV line, even though nothing had gone into it since the end of the operation.  And that was it.  From the time I got to the hospital at 12 noon and June 22nd, it was a grand total of 25-1/2 hours in the hospital.  I got out on June 23rd at 1:30PM.

    Results were available, as I said, in about three days as I recall.  My first follow-up with the surgeon was at about the four week mark and that took about 10 minutes.  He was very pleased.  Subsequent scans have shown nothing in there and the follow-up appointments have been with a nurs practitioner.

    And, no, I've not seen my fiance nurse since then.  LOL.  I remain very happily married to my wife of, now, 38 years.

  • Jparra48
    Jparra48 Member Posts: 28
    edited October 2017 #28
    Hi annissa

    I just had my two week follow up on my laparoscopic partial nep. My surgery was 3 hours long. During that time the doctor had told my husband my tumor was intertwined into my renal artery. Originally doctor asked my husband if he wanted to to just take the whole kidney however my husband and I discussed it and I wanted doctor to do whatever he could to save The kidney  Luckily doctor was able to save it. 

    The pain was intense I’m not going to lie. But then again morphine doesn’t really help my pain. I had my surgery at 2 in the afternoon and at 0500 the next day I was up walking. When you first get up to walk be prepared for your belly to be extremely sore and stabilize yourself before you actually start walking. I literally took a few steps outside my hospital room and then had to go lay back down. Keep up on the meds. I made the mistake of sleeping all day and didn’t take my meds and I ended up waking up in the middle of the night shaking  in severe pain. It does hurt when they take the drainage tube out. I suggest take your pain meds and then wait about 20 min before you let them take it out. Another thing I wasn’t prepared for. The clothes I brought to go home in didn’t fit because I was so swollen from all the fluids they gave me so bring extra big clothes. And a small pillow to put over your belly for the ride home. I slept on my couch because it was the most comfortable at the time. My bed is too tall for me to get up on at the time. I have 7 incisions and about 3 of them are pretty big. After 5 Days I stopped taking my heavy duty meds (I couldn’t handle the side effects) and I controlled pain with Tyleno. I also had ice packs I put on my belly that felt really good. Best of luck to you. I am scheduled for another lap part nep at the end of November because I had cancer in both my kidney. 

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited October 2017 #29

    I had a robotic partial in

    I had a robotic partial in June, 2016.  The procedure took about three hours, including the time for the fire alarm that I'm told went off.  The procedure started around 3PM and I was in a regular room at about 8PM, with 2 hours in recovery.  The first sound I recall was my niece (who stayed with my wife) screaming in my ear and me telling her to shut up.  LOL.  The second thing I remember was the nurse getting me to stand up and me meekly complying.  (Yes, they do get you up almost immediately.)

    I recall having four tiny incisions, plus a fifth for the drain.  I had little to no pain and actually, other than being thirsty all night (and I was able to drink water immediately), I slept very well.  I ate the next morning and things started to happen very rapidly after that.

    The surgical team (minus the surgeon) came to tell me everything went very well and that they got it all.  They told me that I could go home as soon as I could handle the pain (which I told them I had none of) and pee.  And they told me the surgeon would be in to visit me around lunch time.  I asked if I could walk and they said yes.

    Not long after that, the nurse came in to remove the catheter.  It's funny, I've had a couple of other surgeries in my life (two big abdominal surgeries) and the only thing I was dreading for this one was the catheter.  I am convinced that the urinary catheter for a male wa developed by the Marquis deSade.  Anyway, that came out and I proposed to the nurse that took it out I was so happy.

    After that came walking and walking and walking.  About 45 minutes into the walk, the floodgates opened and I peed.  I durifully reported that to my fiance nurse and we were both very happy about that.  So I walked some more.

    I had a little lunch and at that time the surgeon came in and said everything looked very, very good.  His guess was chromophobe RCC (a guess that was verified about three days later) and he explained what kind of cancer that was and that I was quite fortunate because it rarely returns, rarely spreads and was one that grew vey slowly.  He also described folow-up (scans and chest x-rays every six months for a year).  He said I was free to go once the nurse practitioner took out the drain, which she did about ten minutes later.  That feeling was unusual, but there, again, wa no pain at all.  She explained what was needed in terms of dressing the wound and off she went.

    My fiance nurse took out the IV line, even though nothing had gone into it since the end of the operation.  And that was it.  From the time I got to the hospital at 12 noon and June 22nd, it was a grand total of 25-1/2 hours in the hospital.  I got out on June 23rd at 1:30PM.

    Results were available, as I said, in about three days as I recall.  My first follow-up with the surgeon was at about the four week mark and that took about 10 minutes.  He was very pleased.  Subsequent scans have shown nothing in there and the follow-up appointments have been with a nurs practitioner.

    And, no, I've not seen my fiance nurse since then.  LOL.  I remain very happily married to my wife of, now, 38 years.

    Lol! Thanks for all the

    Lol! Thanks for all the details. I see everyone has a diff experience as we all have diff bodies! I am happy everything weny so well for you!!! I wish you all the best!!!!!!

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited October 2017 #30
    Jparra48 said:

    Hi annissa

    I just had my two week follow up on my laparoscopic partial nep. My surgery was 3 hours long. During that time the doctor had told my husband my tumor was intertwined into my renal artery. Originally doctor asked my husband if he wanted to to just take the whole kidney however my husband and I discussed it and I wanted doctor to do whatever he could to save The kidney  Luckily doctor was able to save it. 

    The pain was intense I’m not going to lie. But then again morphine doesn’t really help my pain. I had my surgery at 2 in the afternoon and at 0500 the next day I was up walking. When you first get up to walk be prepared for your belly to be extremely sore and stabilize yourself before you actually start walking. I literally took a few steps outside my hospital room and then had to go lay back down. Keep up on the meds. I made the mistake of sleeping all day and didn’t take my meds and I ended up waking up in the middle of the night shaking  in severe pain. It does hurt when they take the drainage tube out. I suggest take your pain meds and then wait about 20 min before you let them take it out. Another thing I wasn’t prepared for. The clothes I brought to go home in didn’t fit because I was so swollen from all the fluids they gave me so bring extra big clothes. And a small pillow to put over your belly for the ride home. I slept on my couch because it was the most comfortable at the time. My bed is too tall for me to get up on at the time. I have 7 incisions and about 3 of them are pretty big. After 5 Days I stopped taking my heavy duty meds (I couldn’t handle the side effects) and I controlled pain with Tyleno. I also had ice packs I put on my belly that felt really good. Best of luck to you. I am scheduled for another lap part nep at the end of November because I had cancer in both my kidney. 

    Thank u for such honesty.

    Thank u for such honesty. Your story sounds exactly how I imagined it all being. Seriously......exactly!!!! I am so sorry you have to go through it again, but let's hope this is the last you hear of this <3

  • rhominator
    rhominator Member Posts: 233 Member
    edited October 2017 #31
    Have an Advocate

    Almost 4 years ago I had full, hand-assisted laparascopic nephrectomy. It took 5 1/2 hours (not including recovery)--not that it mattered to me, but my wife was quite worried during the lengthy procedure, especially when the nurses walked out during a shift change. Thankfully, we had friends from our church to wait with her.

    I was in hospital for three days. I ended up with the hiccups shortly after the surgery which were brutally painful. But my wife was there, on top of it, she never let up; she really worked the system to ensure I got the right care and meds in a timely fashion. Otherwise I would have just laid there in agony (I don't complain much).

    The moral of the story is to ensure your loved ones are cared for during your surgery, and to make sure you have a health care advocate to fight for you while you're recovering.

  • AnnissaP
    AnnissaP Member Posts: 632 Member

    Have an Advocate

    Almost 4 years ago I had full, hand-assisted laparascopic nephrectomy. It took 5 1/2 hours (not including recovery)--not that it mattered to me, but my wife was quite worried during the lengthy procedure, especially when the nurses walked out during a shift change. Thankfully, we had friends from our church to wait with her.

    I was in hospital for three days. I ended up with the hiccups shortly after the surgery which were brutally painful. But my wife was there, on top of it, she never let up; she really worked the system to ensure I got the right care and meds in a timely fashion. Otherwise I would have just laid there in agony (I don't complain much).

    The moral of the story is to ensure your loved ones are cared for during your surgery, and to make sure you have a health care advocate to fight for you while you're recovering.

    Great advice. Thank u!!

    Great advice. Thank u!!

  • Jparra48
    Jparra48 Member Posts: 28
    Also forgot!

    Annissa. I got my pathology report the second day I was at the hospital. And also ask if you need chemo. I didn’t know this but my doctor told me on occasion some patients need to do a slight bout of chemo. In my case if I needed it I would take the chemo pill Per doctors recommendation. Before I have my next surgery I’m going to buy more ice packs for my belly because it felt good. And also keep up on the coLace they give you. It helps....scary when you first have to poo. Don’t strain it really hurts. Wish you well! I’ll be thinking of you. 

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    Jparra48 said:

    Also forgot!

    Annissa. I got my pathology report the second day I was at the hospital. And also ask if you need chemo. I didn’t know this but my doctor told me on occasion some patients need to do a slight bout of chemo. In my case if I needed it I would take the chemo pill Per doctors recommendation. Before I have my next surgery I’m going to buy more ice packs for my belly because it felt good. And also keep up on the coLace they give you. It helps....scary when you first have to poo. Don’t strain it really hurts. Wish you well! I’ll be thinking of you. 

    Once again, great advice!

    Once again, great advice! Thank u sooooo much! I wish you well too.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    Full laparoscopic nephrectomy in late January 2017

    I was diagnosed in ER and admitted on a Thursday afternoon. There was no time to prepare at all; it all went down pretty quickly. I had the surgery the next day, though I had to wait (while fasting) all day for the surgery which eventually happened in the late afternoon. Not sure how long I was under - I didn't even ask, come to think of it. When I was awake, they got me up, and later that night - or early Saturday morning - they removed the catheter. That was pretty tough, as Bay Area Guy mentioned. But I chalk that up to the gender thing. No drains, thankfully. I started walking as soon as I could after the catheter was removed. I walked as much as i could, sometimes in the middle of the night - just did laps around the hallways of the hospital. I was off the morphine and on oral pain meds by Saturday night, and was eating more or less normally by Sunday morning. So, they sent me home on that Sunday. 

    I was out of work for six weeks for recovery. The biggest problem was the gas. That took a while to go away - Gax-X is your friend. And I was very happy to take the pain meds (Percocet) while I needed them. Eventually, I decided I was good and didn't need them any more. But I probably took them for most of the six weeks - albeit less and less as the weeks wore on. I still have a fairly full bottle of them that I never touch, so I know I didn't get hooked. But for me, the pain pills also helped me relax and sleep. It did take a while to get full night's sleep. When I finally did go back to work after six weeks, I assumed I had rested a lot so I'd be good to go. Not so much! First day, I had to leave work around lunchtime, because I was so fatigued. In fact, I worked from home the next day. By the second week, I was back to full days and the whole commuting thing. (I was living in NJ at the time and commuting 90 min each way into NYC.)

    Now, I almost forget I had the surgery. But getting to that point took time. I encourage you to be patient with yourself and don't push yourself too hard - especially when it comes to bending and picking things up. (My little dog was a challenge at first.) You'll get there with time, as long as you work at it at a pace that works for you.

    Best of luck with everything!

    Gary

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited October 2017 #36

    Full laparoscopic nephrectomy in late January 2017

    I was diagnosed in ER and admitted on a Thursday afternoon. There was no time to prepare at all; it all went down pretty quickly. I had the surgery the next day, though I had to wait (while fasting) all day for the surgery which eventually happened in the late afternoon. Not sure how long I was under - I didn't even ask, come to think of it. When I was awake, they got me up, and later that night - or early Saturday morning - they removed the catheter. That was pretty tough, as Bay Area Guy mentioned. But I chalk that up to the gender thing. No drains, thankfully. I started walking as soon as I could after the catheter was removed. I walked as much as i could, sometimes in the middle of the night - just did laps around the hallways of the hospital. I was off the morphine and on oral pain meds by Saturday night, and was eating more or less normally by Sunday morning. So, they sent me home on that Sunday. 

    I was out of work for six weeks for recovery. The biggest problem was the gas. That took a while to go away - Gax-X is your friend. And I was very happy to take the pain meds (Percocet) while I needed them. Eventually, I decided I was good and didn't need them any more. But I probably took them for most of the six weeks - albeit less and less as the weeks wore on. I still have a fairly full bottle of them that I never touch, so I know I didn't get hooked. But for me, the pain pills also helped me relax and sleep. It did take a while to get full night's sleep. When I finally did go back to work after six weeks, I assumed I had rested a lot so I'd be good to go. Not so much! First day, I had to leave work around lunchtime, because I was so fatigued. In fact, I worked from home the next day. By the second week, I was back to full days and the whole commuting thing. (I was living in NJ at the time and commuting 90 min each way into NYC.)

    Now, I almost forget I had the surgery. But getting to that point took time. I encourage you to be patient with yourself and don't push yourself too hard - especially when it comes to bending and picking things up. (My little dog was a challenge at first.) You'll get there with time, as long as you work at it at a pace that works for you.

    Best of luck with everything!

    Gary

    I really appreciate you

    I really appreciate you taking the time to write. You took your time to heal and that is the hardest part for me.... It is very diffcult to accept my body needs to rest and that I cannot just rush back into things!

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    AnnissaP said:

    I really appreciate you

    I really appreciate you taking the time to write. You took your time to heal and that is the hardest part for me.... It is very diffcult to accept my body needs to rest and that I cannot just rush back into things!

    I suspect...

    Anissa, I suspect your body will be more than willing to remind you that you need to rest and cannot just rush back into things. At least mine was Laughing !

  • JerzyGrrl
    JerzyGrrl Member Posts: 760 Member
    edited October 2017 #38
    Angie1496 said:

    My right kidney partial had 5

    My right kidney partial had 5 incisions.  3 along the right side of my abdomen and one at the these 4 are about an inch or so in length. There is one between 2 or 3 inches just below the breastbone that the tumor was removed from my body through.  My tumor was on the upper pole of the kidney.  My doctor said it was a relatively easy surgery because it was not very deep in the kidney. It lasted about 2 hours.  My first few days were painful but not as painful as I was expecting. I had a TAP block as part of my anesthesia and they say that is why I had less severe pain upon waking. I recommend a recliner ar home for sleeping if you have one.  I didn’t have one. Getting up from the best was difficult. I had an incline wedge pillow but a recliner to assist with sitting up would have made it so much easier.

     

    I got my path results about a week later but got the actual path report at my 2 week follow up. I went back to work at work 3.5 weeks later but I dont have a physically demanding job. I worked from home 3 weeks. Or the Monday following my Wednesday surgery. 

     

    5 weeks out today and I am still having some sensitivity around two of my incisions. My doc told me I could start back at the gym two weeks ago but I haven’t yet. I’m still tiring easily and trying to listen to my body better than I used to do. 

     

    If if I could post a pic here I would show you my abdomen and my tumor. I asked for pics of if because I needed to see that evil mass!

    I got the long incision...

    I got the long incision below my belly button. My surgeon cheerfully told me, "I did that so you can wear a bikini." Considering the last time I wore a two-piece bathing suit was around SuperBowl I or II, I really hadn't given any thought to that, but you never know Cool .