The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uncle NED is visiting but hasn't moved in yet...

penitent
penitent CSN Member Posts: 79
in Kidney Cancer #1

An update on my son-in-law John who was diagnosed last summer with stage IV, grade 4 sarcomatoid RCC.  The latest scans came back a week or so ago and there are NO visible tumors anywhere and the one on his aorta that was zapped with SBRT a few months ago is totally non-existant now (only scar tissue from the radiation burn in the lung is there).  He continues on Opdivo every two weeks which seems to be working well for now which still causes him extreme fatigue.  He is 43 yo and has two children, 3 and nearly 2.  We feel very blessed at this time.

I understand that you really can't cry NED until 3 sucessive scans show no evidence of disease...but really...so far so good!

Penitent

Like Care

Comments

Discussion Boards