Hello! I'm New To The Group

Seths Grandma
Seths Grandma Member Posts: 2
edited April 2017 in Caregivers #1

I'm a newbie to this fabulous forum! My husband, just 48 years old, was diagnosed with colon and omentum cancer in August 2016. We started off with our best foot forward, knowing we would beat this thing, and now have hit a brick wall and seem to be at each others throats. Just when I thought no one could possibly understand what I'm feeling, I found it all right here. I've been reading some of the posts and am feeling a new sense of relief. There is a lot of good advice here, and a lot of stories that I am nodding yes to in agreement. Thank you everyone for sharing your stories and your words of wisdom. I look forward to reading more and joining discussions!

Comments

  • sherylcv13
    sherylcv13 Member Posts: 23
    #2
    New To The Group Too!

    I, too, am new to this group.  My husband was diagnosed with tongue cancer in September 2016.  He had tumors in both the base of the tongue and in the oral tongue.  We went into this with positive attitudes and knowing that it was going to be a long haul.  He had chemo/radiation in October and part of November.  In January 2017 the doctor found that those treatments had not taken care of the cancer in the oral tongue and that it was growing again and very aggressively.  On Jan 24th he had surgery that lasted 18 hours to remove the tumor, reconstruct the tongue from part of his thigh, and remove most of the lymphatic tissue and nodes from his neck.  Physically he is healing very well.  We're struggling with some lymphedema but that is lessening.  Our biggest problem is his fatigue yet inability to sleep.  Some days are very sweet and joyful while others are extremely stressful and somewhat depressing.  It's nice to be here and read of others' experiences.  I hope to gain some knowledge and, as Seths Grandma says, wisdom.  Just knowing that I'm not alone is a huge help.

  • Concernedone
    Concernedone Member Posts: 5
    edited May 2017 #3
    Me Too..

    Last wednesday we had hoped that basic Mohs surgery would remove the squamous cell carcinoma which has appeared on my wife's (55) upper lip. What we found after 4 cuts is that it has invaded her nerve, perineurial invasion, and not we are facing radiation. I did not expect the extreme levels of fear and despair I am witnessing. We do not yet even know where this is going and yet she is saying she is going to die. She's afraid. I get it. Same cancer took her mother in 3 years. Its a real possibility. What I find is working, even though I really can't talk about treatment options with her, I can talk about how she feels and how we should talk to each other and communicate. This seems to be a way to keep the conversation going and let her know I care. 

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