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Pleomorphic ILBC out there?

Kats2
Kats2 CSN Member Posts: 126
in Breast Cancer #1

Does anyone have the Pleomorphic variant of Invasive Lobular Breast Cancer? I have this subtype which is more aggressive, with the BC cells dividing and spreading more rapidly than in regular ILBC. From what I've learned, regular ILBC responds very well to Estrogen inhibitors like Tamoxifen, Arimidex, Faslodex etc. For me, they did not work well. I'm finding out now that the course of treatment for the Pleomorphic type of ILBC is chemo.This was not recommended for me in 2012 and I just had a lumpectomy followed by 33 rounds of radiation, then the drug Arimidex. My Oncologist did no bloodwork nor any scans on me for 1 1/2 yrs. and my BC metastisized to my bones. I'm on a chemo drug now, Xeloda, and have responded much better on this though after 20 months on Xeloda my tumor markers are starting to climb.

Does anyone out there have the word Pleomorphic in their pathology report? And what type of treatment are you on?   Thanks for any input you can give me.     Kats2

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