T-Cell Lymphoblastic Lymphoma Treatment

carolinagirl811

Hi all,

I was diagnosed with Stage III pediatric T-Cell Lymphoblastic Lymphoma almost two years ago. I finish Maintenance in May. I went through induction, cosolidation, interim maintenance, delayed intensification, and now am in maintenance. Through induction, consolidation, and interim maintenance, I continued on the ALL protocol. During delayed intensification, I was diagnosed with avascular necrosis. My oncologists decided to stop my steroids. I underwent surgery for the AVN, but since it didn't show complete healing, I didn't get back on the steroids. I worry daily about relapse since I don't have steroids all through maintenance. Does anyone know of any studies or information about prognosis for people in my situation? I know there are always pros and cons to everything, but I worry about the risks associated with this. 

 

Thanks!