Anyone have recurrence while on meds

sbmly53
sbmly53 Member Posts: 1,522
in Breast Cancer #1

or soon after going off? Arimidex, Aromasin, ....?

Comments

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #2
    You have me worried

    Are you okay? Or just taking a poll? Just for the record, I took Arimidex five years and went off last year as advised by my oncologist because of the osteoporosis and so far, knock wood, cross fingers and toes, I'm all right:)

    xoxo

    Victoria

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #3
    aisling8 said:

    You have me worried

    Are you okay? Or just taking a poll? Just for the record, I took Arimidex five years and went off last year as advised by my oncologist because of the osteoporosis and so far, knock wood, cross fingers and toes, I'm all right:)

    xoxo

    Victoria

    What's going on, Sue?

    Sue, please let us know what's going on with you -- we went through treatment together way back when, let us help you through whatever's going on now.  Even if it turns out to be a whole lot of worrying for nothing, we've all been there, we can be there with you, too.

    Traci

  • jennytwist
    jennytwist Member Posts: 896
    edited November 2016 #4
    Please let us know.....

    ..you are OK. 

    I just went off Tamoxifen because of some postmenopausal bleeding - have had 2 biopsies & 1 ultrasound to try to see what could be causing it.  So far the tests have been inconclusive so I'm having a hysterscopy & D & C.  Hoping it's just "normal' from the tamoxifen.  I know using tamoxifen can cause uterine problems so this wouldn't be a reurrance unless something else shows up.  

    Anyway,  sorry to go on about me - hoping all is well with you and you are just checking stats.

    Jenny

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    edited November 2016 #5
    I have beenoff tamoxifen

    I have beenoff tamoxifen since 2013-so far all good.

     

    Denise

  • sbmly53
    sbmly53 Member Posts: 1,522
    edited November 2016 #6
    Well, it's like this...

    seven years after the first diagnosis, I have a new diagnosis. Other breast and it was caught very early. recurrence or new? Don't know Yet. See the surgeon tomorrow. My guess is a lumpectomy and rads.

    i could only tolerate Arimidex and Aromasin for 4 1/2 years, and just wonder if I should have continued! but I had so much joint pain Especially my ankles and feet.

    I am disappointed for sure, but much more ready this time and more sure that I am on it.

    hoping all my "classmates" those who were there with me in 2009/2010 and later are doing well.

     

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    edited November 2016 #7
    Sue - our Kindred Spirit from 2009-2010

    Nice to hear from you  I am unhappy surrounding your post.  Gosh this stupid breast is the gift that keeps on fixing -- grrrrr

    sending you POSITIVE thoughts my dear -- NO after treatment Med's .. no help from my end ..Sorry

    srill Wild crazy and barefoot in Southern California- Vicki Sam

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    edited November 2016 #8
    sbmly53 said:

    Well, it's like this...

    seven years after the first diagnosis, I have a new diagnosis. Other breast and it was caught very early. recurrence or new? Don't know Yet. See the surgeon tomorrow. My guess is a lumpectomy and rads.

    i could only tolerate Arimidex and Aromasin for 4 1/2 years, and just wonder if I should have continued! but I had so much joint pain Especially my ankles and feet.

    I am disappointed for sure, but much more ready this time and more sure that I am on it.

    hoping all my "classmates" those who were there with me in 2009/2010 and later are doing well.

     

    #@$^%*&!

    Sue, I'm so sorry to hear this, and definitely shouting some curse words at the air on your behalf.

    But I agree with you that you'll be much more ready this time -- you've already been through this once, you won't be nearly so overwhelmed with unfamiliar terminology (as we all were), you have a better idea of how you'll need to proceed, and I'm hoping you'll be able to use the same doctors you already know?

    But it still really S*CKS.

    Big hug to you,

    Traci

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #9
    Early is good

    But having to go through it again, though -- well, it stinks. And all the wondering about all the stuff we all wonder about isn't going to help much.  So let's get you through this and back into whatever you were doing and hopefully enjoying before this happened.

    xoxo

    Victoria 
     

     

  • sbmly53
    sbmly53 Member Posts: 1,522
    #10
    Thank you all

    it does stink. Saw the surgeon today, same one I had first time. i have been seeing him right along, he orders my mammo's, etc.

    it is DCIS, non-evasive, so surgery will be less complicated than last time. And rads, which can be done since it is the other breast. i love him, have every confidence in him. His nurse told me that his father is dying, but he came into the office to see me and 2 other breast cancer patients because he does not want us to have to wait.

    i have so much going on right now, I asked to be scheduled on/after the 29th. 

  • camul
    camul Member Posts: 2,537
    #11
    I am sorry you are sorry you are going thru this again

    2016-11-09

    Yet happy you have such a caring surgeon.  I have come up o the conclusion, this is the one disease that just keeps giving!  Am so happy I hat I is non-invasive and not metastatic..  al things in your favor,  Still doesn't stop the swear words!

    Hugs and so happy no Chemo!

    Carol

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