Kidneys?

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I completed treatment in May (surgery, chemo, brachytherapy) for stage 1A uterine carcinosarcoma (MMMT) and papillary serous (they found both types). Was told I'm in remission (yay!). On both the pre-treatment and post-treatment CAT scans there were what was described as "low-density renal lesions" that couldn't be classified (there was also very small lesions on my liver and spleen; the one on my spleen had shrunk in the post-chemo scan--nothing was deemed to suggest spread). An ultrasound of my kidneys was recommended.

A few days ago I went to see my primary Dr to check in with her about non-cancer related issues and my overall health. I figured it might be a good idea to let her know about the scan report. She recommended that I go ahead and have the ultrasound. I had it done this morning and got a call a couple hours ago directly from the Dr. She said there were "inconsistencies" between what was seen on the CAT scan in May and what showed on the ultrasound this morning and recommended that I now have an MRI.

I'm trying not to freak out but it's hard not to leap ahead to the possibility of recurrence. Of course it could also indicate something wrong with my kidneys not related to cancer (not good either) or HOPEFULLY it will turn out to be nothing! I do keep wondering if these types of cancer do ever recur in the kidneys? Has anyone heard anything or had any experience to suggest that recurrence ever happens in the kidneys? 

Comments

  • SandyD
    SandyD Member Posts: 130
    edited October 2016 #2
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    Looks like kidneys are possible

    Did a little more research and it looks like kidneys are a possible site for recurrence. Not panicking. Could be nothing or something minor. I may very well be celebrating Thanksgiving in a few weeks with something to be thankful for :) 

  • janaes
    janaes Member Posts: 799 Member
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    Dont know much about cancer

    Dont know much about cancer spreding to kidneys but wanted to wish you the best for your MRI.  I too Have MMT uterine cancer and know a little of how it feels about not wanting a reacurance.  I am only a month out from chemo and still hae two brackytherapys left.   Not really long enough to worry but have already thought about. I hope you can keep peace as you travel through the uknown of all this.  I hope it ends up being nothing.

    Janae

     

  • Nellasing
    Nellasing Member Posts: 528 Member
    edited October 2016 #4
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    I don't know either...

    but also want to wish you all the best as you move through this process.  I'm so sorry you have to have a disruption in your NED but hope with you it is nothing!  I like your comment about Thanksgiving but I've found so much to be thankful for each and every day no matter what is going on- it's just a blessing not to sleep walk through my life!!!  Keep us posted :D  (((HUGS))) and prayers!

  • SandyD
    SandyD Member Posts: 130
    edited October 2016 #5
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    janaes said:

    Dont know much about cancer

    Dont know much about cancer spreding to kidneys but wanted to wish you the best for your MRI.  I too Have MMT uterine cancer and know a little of how it feels about not wanting a reacurance.  I am only a month out from chemo and still hae two brackytherapys left.   Not really long enough to worry but have already thought about. I hope you can keep peace as you travel through the uknown of all this.  I hope it ends up being nothing.

    Janae

     

    The unknown

    Janae, you nailed it! It's the unknown of it all that's probably one of the worst things for us all as we travel this journey.

    Yes, I am going to focus on all that brings me peace and calm as I cope with this. So important!

  • SandyD
    SandyD Member Posts: 130
    edited October 2016 #6
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    Nellasing said:

    I don't know either...

    but also want to wish you all the best as you move through this process.  I'm so sorry you have to have a disruption in your NED but hope with you it is nothing!  I like your comment about Thanksgiving but I've found so much to be thankful for each and every day no matter what is going on- it's just a blessing not to sleep walk through my life!!!  Keep us posted :D  (((HUGS))) and prayers!

    Blessings too

    I too have found blessings and gifts along with the fear and uncertainty. Coming closer to the people in my life, noticing and appreciating the world around me in ways I hadn't before, etc. :)

  • brissance
    brissance Member Posts: 192
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    Ohh Boy

    I hate that Sandy...   I am so sorry.  Thing is we all or so sensitive to every ache and pain that we drive ourself crazy,,,  but good thing is you have found something that is so small and new that routinely you would have never known.  Could it be cancer...   of course and that is a fear but it could be results of xray or chemo or or or...   I know we all decide it is the worse and I don't have any idea how to avoid that particular mind trap as I have it as well.  You seem to be in the mood to fight this new issue and I salute you.  So as you and Janae know, stay as calm and find as much peace as possible.  And good catch...  you have found something that is amiss based on your diligence.  High five...   I know this is tough and you will be in my prayers 

  • DrienneB
    DrienneB Member Posts: 182
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    Hang Tough Sandy!

    Look how wise you were to bring all of your medical caregivers into the picture! And you are so blessed that each is willing to look at all the angles and suss out all that they can. (I wish I'd pushed my folks harder..) I am hoping with you that this latest kidney "show up" is an anomoly that proves to be lesser in significance. If not, I hope it can be successfully shot down. In the meantime, I'm with you in looking closeby and farther afield at things to thank God for.  

    I also have MMMT - stage IIIb when diagnosed 3 years ago. - jane

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    edited October 2016 #9
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    I feel for you, Sandy!  I

    I feel for you, Sandy!  I know how every little ache and pain is magnified because we are all waiting for the other shoe to drop.  When they did my CT scan, my GP went through it with me after my oncologist told me all was good.  Well, all was NOT good but the oncologist was only looking for cancer.  My GP said I had fatty spots on my liver and diverticulosis and mentioned that the diverticulosis could cause some pain if those little pouches became inflamed.  

    The point is, as we age, a LOT of things can start to go wrong in our bodies but we never know about them because "normal" people are not getting all these scans.

    I hope this is nothing and I wish I had a magic wand to take away all the worry and stress these things cause!! (((Sandy)))

    Love,

    Eldri 

  • cindy0519
    cindy0519 Member Posts: 173
    edited October 2016 #10
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    When I was first diagnosed

    When I was first diagnosed with UPSC (in Oct last year) it was also found that I have a 5.2cm "mass or cyst" on my right kidney. They were not sure at the time which it was so I was immediately scheduled for a renal CT.  This scan revealed a exophytic mass arising from the posterior aspect of the right kidney has been previously evaluated and is consistent with a cyst. This remains smoothly marginated and is measuring approximately 5.3 cm in greatest dimension.  This continues to be re-evaluated with each CT scan and remains smoothly magined though it has grown a bit more.

    I'm told that as long as I have no pain or other issues related to this it will remain and not action is necessary. 

    Hopefully yours will be something like this...something to be aware of and monitor but that requires no action!

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    edited October 2016 #11
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    Sandy, I finished frontline

    Sandy, I finished frontline for MMMT in May, too. So very sorry to hear about this turn of events for you. I can only imagine how nerve-wracking it must be. Keep up the good attitude and try not to worry too much. I'm certain that you'll be enjoying many, many lovely Thanksgiving dinners and not thinking about any of this! Kim 

  • SandyD
    SandyD Member Posts: 130
    edited October 2016 #12
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    cindy0519 said:

    When I was first diagnosed

    When I was first diagnosed with UPSC (in Oct last year) it was also found that I have a 5.2cm "mass or cyst" on my right kidney. They were not sure at the time which it was so I was immediately scheduled for a renal CT.  This scan revealed a exophytic mass arising from the posterior aspect of the right kidney has been previously evaluated and is consistent with a cyst. This remains smoothly marginated and is measuring approximately 5.3 cm in greatest dimension.  This continues to be re-evaluated with each CT scan and remains smoothly magined though it has grown a bit more.

    I'm told that as long as I have no pain or other issues related to this it will remain and not action is necessary. 

    Hopefully yours will be something like this...something to be aware of and monitor but that requires no action!

    Thinking it will turn out to be

    something like what you describe.

    In the meantime I called my gyn oncologist and talked to the people in his office. They're going to coordinate with primary doc about what, if anything, needs to be done and I'm going to just go on and continue to live my life Smile.