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  • Dan6652
    Dan6652 Member Posts: 25
    edited October 2016 #22
    Abunai said:

    Dan,

    Dan,

    Nobody is willing to give me a prognosis regarding the nerve pain or my mobility. Even though the spinal cord is decompressed, there was an injury and it's hard to say how much, if any functionality will come back or how much nerve pain will go away. But, again, the medication really helps it (Gabapentin/Neurontin).

    I did 2 weeks of in-patient PT/OT, and just started my out-patient PT, which is scheduled through mid-December.

    I've gone from absolutely no function in my left leg and minimal function in my right to being able to walk with Loftstrand crutches, and I feel like I'll continue to improve. The function is coming back faster than the nerve pain is going away, but the nerve pain is nothing compared to what it was prior to the debulking surgery.

    Hope this helps :)

    Abunai

    Yes, it's frustrating there seems to be no guarantees with pain, treatment or anything. My brother is currently on his second day of inpatient PT/OT and is improving. I so look forward to the day when he is walking around with some pep in his step. The last six weeks have been brutal.

    Has anyone offered you the change for IL-2? The oncologist said my brother is a candidate so I think he is going to try it. The chance of remission is small but definately worth a shot.

    Thank you so much for answering my questions.

    Good luck with your future treatment!

    Keep us posted.

  • Abunai
    Abunai Member Posts: 173 Member
    #23
    Dan6652 said:

    Abunai

    Yes, it's frustrating there seems to be no guarantees with pain, treatment or anything. My brother is currently on his second day of inpatient PT/OT and is improving. I so look forward to the day when he is walking around with some pep in his step. The last six weeks have been brutal.

    Has anyone offered you the change for IL-2? The oncologist said my brother is a candidate so I think he is going to try it. The chance of remission is small but definately worth a shot.

    Thank you so much for answering my questions.

    Good luck with your future treatment!

    Keep us posted.

    No discussion of IL-2 from my

    No discussion of IL-2 from my doctor. I'll ask about it. Thanks!

    I do know that I am not a candidate for clinical trials because all of my mets are in the bone and can't be measured for "response rate".

     

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #24
    Abunai said:

    No discussion of IL-2 from my

    No discussion of IL-2 from my doctor. I'll ask about it. Thanks!

    I do know that I am not a candidate for clinical trials because all of my mets are in the bone and can't be measured for "response rate".

     

    IL2

    All I'll say is that it is a pretty serious treatment not to be undertaken lightly. But by all means talk to your Dr about it.

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