Newly diagnosed with Prostate Cancer

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  • Swingshiftworker
    Swingshiftworker Member Posts: 1,017 Member
    MK1965 said:

    shrinkage

    Just had surgery on November 2nd robotic assisted, catheter removed today, leaking a lot.

    i do not have a penis anymore. I just have a pee hole in my pelvic wall. Even penis head disappeared completely.

    Already regretted robotic surgery, very painful post op time, never experienced so much pain in my life.

    I am 51, Gleason 7 (4+3) 1of 12 positive left base lateral. Incidentally dx after TURP with Gleason 6.

    MK

     

    Hope you keep telling your story . . .

    MK:

    I'm sorry that your surgery did not go well but I am glad that you are telling your story and hope that you continue to do so.

    I'm a long term opponent to surgery -- have been ever since I read about after I was 1st diagnosed in 2010 -- and have continued to "warn" newbies about it every chance I'm get.  I'm sure the older members are tired of hearing it from me but I will not stop warning those who I think need to learn about the risks of surgery which (as you've discovered) can be quite debilitating.  I just sorry that I wasn't able to warn you (or if I did, that you didn't see fit to take my advice) before you made your treatment choice.

    Penile retraction is one of the consequences of surgery that NO ONE seems to talk about and, like the OP in this thread, disbelieve it when they are told about it.  It was one of the many reasons I chose not to do surgery and is something that every man needs to learn and think about BEFORE he decides to go ahead with surgery. 

    I hope that things getter better for you in the near future and I also hope that you continue to tell your story (here or elsewhere) to warn other men of the "dangers" of surgery for the treatment of prostate cancer.