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Looking for support, prayers, thoughts and vibes - please

AMAYEU
AMAYEU CSN Member Posts: 8
in Kidney Cancer #1

Looking for support, prayers, thoughts and vibes - please

its been a awhile. Hope to update my profile.  38male clearcellrcc stage 4.  Sutent didn't work and on opdivo.  got scans today.  side effects are rough.  need the posiitive thoughts for this scan.  

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Comments

  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #2
    Hi Amayeu,

    Hi Amayeu,

    Sending my positive thoughts your way! Hang in there!! There are lots of members here who have been through many different meds/trials. I am sure some will chime in soon to share their experiences!!

    Please post your results!

    Hugs

    Jojo

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  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    edited August 2016 #3
    Good luck

    With the scan, and I hope you soon find a drug that works for you.

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  • Shecka1121
    Shecka1121 CSN Member Posts: 117 Member
    #4
    I pray that your doctors will

    I pray that your doctors will be guided to provide you with a solution for NED and no pain.  Sorry that your journey has been rough. Many thoughts your way.

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  • Dutch1
    Dutch1 CSN Member Posts: 152 Member
    #5
    Hang in there

    I have been stage 4 for three and a half years now.  Three different drugs plus radiation during that time.  Plenty of scans.  Yep, the wait for the scan results is unnerving.  Do your best to get the follow up doctor's visit schedule ASAP after the scan.  That helps me a lot.  There are quite a few drugs out there for kidney cancer folks and give the oncologist time to see what he/she can find which can effectively deal with your situation.  A good number of stage 4 people can reach some sort of stability.  I hope and pray that you'll be one of them.  Hang on; being that we're seeking treatment in 2016, we have a lot of advantage over those who were seeking treatment 15 or 20 years ago.  My sense is that many new doors have been opened in recent years.  Also, don't be afraid to get a second opinion.  The treatment we receive is a combination of art and science.  Getting another viewpoint when contemplating big decisions can only be helpful.  I hope that you'll find the right combination soon.

    Dutch

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  • hardo718
    hardo718 CSN Member Posts: 853 Member
    #6
    Praying for you Amayeu

    Sorry about your rough ride.  Here's to hoping & praying NED pays you a much deserved visit.  Let us know,

    Donna~

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  • todd121
    todd121 CSN Member Posts: 1,448 Member
    edited August 2016 #7
    Wishing you well

    I hope this new drug works for you!

    Todd

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  • rhominator
    rhominator CSN Member Posts: 233 Member
    edited August 2016 #8
    Hoping for good scans

    Hi Amayeu, I'm hoping your scans are favorable and that the side effects diminish.

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  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    edited August 2016 #9
    rough ride

    I guess this never gets easy. You have to think positive and look forward. Ask me how I know.

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  • APny
    APny CSN Member Posts: 1,995 Member
    edited September 2016 #10
    Thinking of you and hoping

    Thinking of you and hoping side effects will lessen. Wishing you the best on the scans.

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  • Allochka
    Allochka CSN Member Posts: 1,101 Member
    edited September 2016 #11
    Sending you positive vibes.

    Sending you positive vibes. You'll definitely find a drug which works for you! Stage 4 is very far from the end...

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  • JerzyGrrl
    JerzyGrrl CSN Member Posts: 760 Member
    edited September 2016 #12
    Prayers and positive thoughts...

    You're definitely in my prayers and I'm sending positive thoughts your way. Do keep us posted.

    All the best,

    Jerzy

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  • stub1969
    stub1969 CSN Member Posts: 997 Member
    #13
    Count me in

    Praying for you and sending good karma. 

    Stub

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  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #14
    {{{{ AMAYEU }}}} Hugs to you

    {{{{ AMAYEU }}}} Hugs to you and yours~

    Thanks for letting us know how you are doing.

    Remember, we'll always walk along side you, if you want us to~

    Hugs, Jan

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  • Kangaroorex
    Kangaroorex CSN Member Posts: 47 Member
    edited September 2016 #15
    Thoughts are with you

    I am confident you will find a drug that offers you the stability we all need.  I personally had good luck with the immunotherapies but it doesnt work for everyone. 

    Hang in there!  I will keep you in my thoughts and prayers

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