FolFox Chemo Treat

Tommy5454

Deathorglory said:

Sorry to Hear Your News

Hello,

Sorry to hear about your brother.  Sounds like he's in a really tough spot.  I'm surprised you didn't find posts talking about stents here.  I recall the subject coming up many times.  I've never had one, so I mostly blow by those posts, but I seem to remember folks having a lot of struggles with them.  I struggled greatly eating when I was getting my initial treatment of chemo/radiation (esophagus fried shut).  I had to eat meat loaf and mashed potatoes everyday for a couple of months.  My oncologist prescribed morphine to help me be able to swallow; the morphine came in a half liter bottle.  I was (and still am) stunned that morphine could be dispensed by the 1/2 liter.  She also gave me something called "magic mouthwash" to help with swallowing.  My doctor suggested Ensure shakes to help me get some balanced nutrition, but I didn't care for them.

I never had taxol/cyramza, but I did have folfox.  That was some pretty hard core stuff.  I'm surprised your brother's doctor has taken so long to see about his HER2 status.  I was HER2+ my second time around (when I was Stage IV) and I was immediately put on herceptin to go along with the folfox.  I still get the herceptin weekly, over five years later.

My oncologist at one point thought I might have brain mets (I passed out while standing a couple of times) and she prescribed a CT scan, not a PET scan.  Maybe your brother's insurance will pay for that.  I know I've had PET scans denied by insurance many times.  

Sorry I don't have a large amount of useful information for you, but know that there's someone passing along positive thoughts for you and your brother.

Ed

Hi deathorolgy are you still

Hi deathorolgy are you still on this site? I wanted to ask some questions my father has a EC recurrence your story aem really similar to his 

Deathorglory

Tommy5454 said:

Hi deathorolgy are you still

Hi deathorolgy are you still on this site? I wanted to ask some questions my father has a EC recurrence your story aem really similar to his 

Hello Tommy

Hello Tommy,

I still come here regularly.  I'm happy to offer whatever I can.  Just let me know.

Hope your father is doing as well as possible.

Ed

Tommy5454

Tommy5454 said:

Hi deathorglory I wanted to get more kmformation from you my father was diagnosed and I see a lot of similar things you guys are going through your post. Are you still on this site? 

very greatful for your reply

Hi im glad you replied and willing to give more information for other.i research all the time for my father he was diagnosed couple days of turning 51 years old, he is 54yrs old now. he was diagnosed with stage III EC. he had chemo and radiation also had the stomach pull up surgery. everything was great went back to work then couple years later got hurt at work went for a scan then found a nodule on left lung also in the area where his EC was first time around, did the biopsy came back it was a recurrence of EC. he is right now on Folfox chemo his 8th round of it scan came back no signs of cancer. but i have read your post on folfox put you back in remission and you would do it again. The Drs never want to say they are trying to put you in remission just maintain it once i seen your post about it came hope. its all alot for everyone.

 

Deathorglory

Tommy5454 said:

very greatful for your reply

Hi im glad you replied and willing to give more information for other.i research all the time for my father he was diagnosed couple days of turning 51 years old, he is 54yrs old now. he was diagnosed with stage III EC. he had chemo and radiation also had the stomach pull up surgery. everything was great went back to work then couple years later got hurt at work went for a scan then found a nodule on left lung also in the area where his EC was first time around, did the biopsy came back it was a recurrence of EC. he is right now on Folfox chemo his 8th round of it scan came back no signs of cancer. but i have read your post on folfox put you back in remission and you would do it again. The Drs never want to say they are trying to put you in remission just maintain it once i seen your post about it came hope. its all alot for everyone.

 

Sounds like good news

Hello Tommy,

You guys seem to have run iinto good news.  A clean scan is certainly encouraging stuff.  Your Dad making it this deep into his folfox treatment is also good.  When I was getting it, my doctor said almost everyone stops after 8 or 9 rounds due to the side effects.  I hope your Dad is able to persevere and get the full benefit of the treatment.  When I had the recurrence in my lung, I was given 7-8 months.  That doesn't make for a good day.  But I'm still kicking 7+ years later.  Hopefully your Dad can get similar results.

Best Wishes,

Ed