NED Times 3

Drivingdaisy

Received Fantastic news today.

 Need to start at the beginning.  The PET scan done at the end of January showed Lt tonsil/base of tongue w/ few flickers in Rt upper lung.

2 1/2 months out from HN SCC HPV+ treatment I starting to improve except for burning pain at the back and right side of tongue when eating.  Went to my ENT who decided to do a scope.  To our relief, the 2 areas that had shown cancer were healed, NED. My mouth was healing beautifully and he prescribed Gabapentin for the burning pain, which has helped.  I had an appointment to see my Chemo Onocologist who was thrilled with the NED report but wanted to do a CT w/contrast to double check if it matched up with the visual done by my ENT since it was 1 month early.  CT was NED for throat but there was a slight change in the lung.  So off to my Lung Dr who did a CT of the lungs, which showed a mass in place of the flickers.  Starting to sweat.  Ordered a PET to include H/N, along with lungs. Really sweating now waiting for results.  Came back today NED for the lungs, and another NED report for the H/N. Needless to say danced around her office!  So I feel really confident that treatment worked and accomplished what it set out to do. 

Celebrated with rare Prime rib with fluffy steak fries and an ice cold beer.  It was delicious.......like butter!  I was thrilled that I could take 2-3 bites before needing a sip of water.  Swallowing was no problem.  I feel very, very fortunate and truly blessed.  

the_wife

That's awesome!!!

That's awesome!!! Congratulations!!!!!! Wow, only 2 1/2 months out and you're having steak fries and ..... beer? Does your doctor know about this? LOL! Seriously, though - enjoy and keep up the good work! 

Drivingdaisy

My Mistake

My Mistake for not being clearer on the timeline. First scope and CTw/contrast was around 2 + 1/2 months out of treatment.  The lung CT and PET was done in month 3.  Starting into my 4th month as of right now.  I also did not have surgery and no lymph nodes were involved.  7 wks Rads w/ 7 Chemos.  Yes, my Drs know about the beer and were surprised.   They will be happy to hear I am eating better and swallowing well.  Need to gain much lost weight.

cardoza33

Drivingdaisy said:

My Mistake

My Mistake for not being clearer on the timeline. First scope and CTw/contrast was around 2 + 1/2 months out of treatment.  The lung CT and PET was done in month 3.  Starting into my 4th month as of right now.  I also did not have surgery and no lymph nodes were involved.  7 wks Rads w/ 7 Chemos.  Yes, my Drs know about the beer and were surprised.   They will be happy to hear I am eating better and swallowing well.  Need to gain much lost weight.

Congrats

I just went through the scanxiety last week.  I am so happy for you.  I love good news on here.  

CivilMatt

NED

 

Dd,

Good NED night to you.

Matt

Kari2007

Fantastic!!

Congratulations on your NED x3!! 

Kari

bebo12249

Congratulations!

Congratulations!

dygit

Fantastic!

Fantastic news!

Barbaraek

Driving Daisy

so happy that lung scan and the others were ok! And it sounds like you are well on your way to a fantastic new normal! Wishing you all the best...

Barbara

Drivingdaisy

Thank you

Thank you all for the wonderful responses.  I am so very fortunate and I hope in some why this will show others having to endure this horrific diagnosis and treatment.......there IS light at the end of the tunnel.  My sincere best to All and Congradulations to all you NED's.    PS:  Anyone from this board from the Bay Area of Florida, would love to converse with you.

Lisa.    (My nickname from my husband & kids really is Driving Daisy)