Lou Ann, how are you?

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EZLiving66
EZLiving66 Member Posts: 1,483 Member

With the recent increase of heart and stroke problems, I'm wondering how you're doing?  If you're not feeling strong enough to post, that's fine....You just rest!!

Just know were thinking about you!!!  (((Lou Ann)))

Love,

Eldri

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  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited July 2016 #2
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    Hi

    i am feeling better than I have for a long time.  The 5 week vacation from chemo has been good for me. I actually started feeling better after I was in the hospital with the partial bowel blockage.  Go figure!.  Both the cardiologist and my oncologist are sure that I did have a heart attack and that it was caused by the Avastin.  They think it caused a blood clot that got to my heart and caused the damage, and then dissolve with the Plavax that they put me on.

    I started new treatment on Monday.  It is an immunotherapy drug, but is given like chemo, no pre drugs though so it was a short infusion.  So far I am not having side effects.  I am afraid to even hope that there won't be any.  We won't know for quite awhile if it is working.

    Eldri, I love your hair and am so glad that your 6 month checkup went well.

    hugs and prayers, Lou Ann

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
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    Lou Ann, so glad to hear that

    Lou Ann, so glad to hear that you don't have side effects so far. From Monday to Friday is very promising!

    Now, don't go out and try to run a marathon just because you are feeling better! I'm so happy for you. It is time you got a break from all the pain and problems.

    Continuing to send you lots of positive thoughts.

    Love and Hugs,

    Cindi

  • Soup52
    Soup52 Member Posts: 908 Member
    edited July 2016 #4
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    Great to hear you are feeling

    Great to hear you are feeling better Lou Ann. I hope it continues:)

  • brissance
    brissance Member Posts: 192
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    Lou Ann

    Fingers crossed and prayers said for Monday!  So happy your mini break has helped recharge you a bit.  God bless.

  • MAbound
    MAbound Member Posts: 1,168 Member
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    Curious

    Immunotherapy is kind of new for cancer treatment isn't it? I'd be curious to know more about it if that's ok with you. Like what is it and does insurance cover it and how you're feeling from it.  Hope it does the trick for you without causing new problems!  You've had more than your share as it is. 

  • ncg007
    ncg007 Member Posts: 138 Member
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    Lou Ann M said:

    Hi

    i am feeling better than I have for a long time.  The 5 week vacation from chemo has been good for me. I actually started feeling better after I was in the hospital with the partial bowel blockage.  Go figure!.  Both the cardiologist and my oncologist are sure that I did have a heart attack and that it was caused by the Avastin.  They think it caused a blood clot that got to my heart and caused the damage, and then dissolve with the Plavax that they put me on.

    I started new treatment on Monday.  It is an immunotherapy drug, but is given like chemo, no pre drugs though so it was a short infusion.  So far I am not having side effects.  I am afraid to even hope that there won't be any.  We won't know for quite awhile if it is working.

    Eldri, I love your hair and am so glad that your 6 month checkup went well.

    hugs and prayers, Lou Ann

    Lou Ann

    happy for you that you are feeling well these days.  I hope this new treatment works well for you.  Take care.

    Nancy

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
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    No problem sharing what I

    No problem sharing what I know.  I am on a drug called Keytruda by Merck.  I believe that with the immunotherapy drugs target cancer cells and mark them. Your immune system is also revved up and it attacks the cancer cells.  It is not approved for uterine cancer yet, but for melonoma, lung cancer and maybe kidney cancer.  I don't think that insureance will pay for it because it is not approved.  I am getting it from Merck under compassionate resaons (low enough income) my doctor pettioned  them and I was excepted.  We will have to pay for the infusion time and any other cost associated with the infusion.  The cancer center does not believe that Medicare will cover any of that.  It is not a lot though.  We won't know for quite awhile if it is working.  CA 125 blood tests are not known to be accurate.  So far I am feeling pretty good no much in the side effect line going on yet.  There was a 4 page article in the July/August issue of Women's Day magazine that list alot of info about it.

    Lou Ann

  • Charissa
    Charissa Member Posts: 129 Member
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    Wow, hoping for promising

    Wow, hoping for promising results with the Keytruda. Wouldn't that be wonderful if it were a successful alternative to the Avistin. Glad you were able to have a break from the chemo.

    I truly do not know how you women do it. I am so proud of all you. You each find time to encourage and share with others; and, maintain a positive attitude with humor. Feeling so blessed to have found all of you!

    BIG hugs, lots of love, and wishes for this immunotherapy drug to be a good fit.

  • Editgrl
    Editgrl Member Posts: 903 Member
    edited July 2016 #10
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    Lou Ann

    So good to hear that you are feeling better AND that you aren't experiencing any side effects from the Keytruda.  Hoping for continued good news for you!

    Chris

  • Soup52
    Soup52 Member Posts: 908 Member
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    Good to know Lou Ann. I want

    Good to know Lou Ann. I want to check out that magazine and I sure hope it works well for you:)

  • Kvdyson
    Kvdyson Member Posts: 790 Member
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    Lou Ann M said:

    No problem sharing what I

    No problem sharing what I know.  I am on a drug called Keytruda by Merck.  I believe that with the immunotherapy drugs target cancer cells and mark them. Your immune system is also revved up and it attacks the cancer cells.  It is not approved for uterine cancer yet, but for melonoma, lung cancer and maybe kidney cancer.  I don't think that insureance will pay for it because it is not approved.  I am getting it from Merck under compassionate resaons (low enough income) my doctor pettioned  them and I was excepted.  We will have to pay for the infusion time and any other cost associated with the infusion.  The cancer center does not believe that Medicare will cover any of that.  It is not a lot though.  We won't know for quite awhile if it is working.  CA 125 blood tests are not known to be accurate.  So far I am feeling pretty good no much in the side effect line going on yet.  There was a 4 page article in the July/August issue of Women's Day magazine that list alot of info about it.

    Lou Ann

    Keytruda

    Lou Ann, glad to hear that you're feeling well and that they have you on Keytruda. I've seen others post about their positive experiences with Opdivo so it'll be great to hear if Keytruda works as well. Please keep us posted. Good luck to you! Kim

  • BC Brady
    BC Brady Member Posts: 70
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    Lou Ann M said:

    No problem sharing what I

    No problem sharing what I know.  I am on a drug called Keytruda by Merck.  I believe that with the immunotherapy drugs target cancer cells and mark them. Your immune system is also revved up and it attacks the cancer cells.  It is not approved for uterine cancer yet, but for melonoma, lung cancer and maybe kidney cancer.  I don't think that insureance will pay for it because it is not approved.  I am getting it from Merck under compassionate resaons (low enough income) my doctor pettioned  them and I was excepted.  We will have to pay for the infusion time and any other cost associated with the infusion.  The cancer center does not believe that Medicare will cover any of that.  It is not a lot though.  We won't know for quite awhile if it is working.  CA 125 blood tests are not known to be accurate.  So far I am feeling pretty good no much in the side effect line going on yet.  There was a 4 page article in the July/August issue of Women's Day magazine that list alot of info about it.

    Lou Ann

    Keytruda

    This has been mentioned for me as well - I go for my last in a series of taxotere and avastin tomorrow - it will be my 18th treatment overall, four different cocktail combinations. Then scan to see if this combo is working any better. I am weary! All I know about Ketruda is that it is the miracle drug that cured Jimmy Carter's cancer in 2 treatments. Apparently you have to have the right markers in your original tumor (s) and that's what I'm waiting to hear. I'm always hopeful, but I have to just shake my head sometimes and say, "How did I get here? I was so healthy!" I am anxious to hear your eventual good news Lou Ann - we are all pulling for you! You give us all hope!

    Billie

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,388 Member
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    Charissa said:

    Wow, hoping for promising

    Wow, hoping for promising results with the Keytruda. Wouldn't that be wonderful if it were a successful alternative to the Avistin. Glad you were able to have a break from the chemo.

    I truly do not know how you women do it. I am so proud of all you. You each find time to encourage and share with others; and, maintain a positive attitude with humor. Feeling so blessed to have found all of you!

    BIG hugs, lots of love, and wishes for this immunotherapy drug to be a good fit.

    I couldn't agree more with

    I couldn't agree more with you Charissa on the amazing women here.  Of those here and the dear ones we have lost - they impress me with the courage and strength.